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A Very Special Case

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Case is an amazing seven year old boy who has faced numerous health challenges with incredible courage and strength.  He experiences many hospital stays. As you might imagine, the frequent inpatient stays cause worry and financial stress on his family. Work days are missed. Bills happen. Purchasing food and gas all add up. Please consider supporting his family so they can spend their time focusing on CASE....not their financial concerns. 

. . . . . . . . . 

This is just a short version of Case’s story for those of you who’ve never really heard it.❤️
Case was born on 12/21/10 via c-section due to many, many illnesses and complications in his tiny body. He was almost full term but only 2 pounds 13 ounces and 14 inches long due to severe IUGR and health issues. Case had multiple congenital anomalies and health issues at birth and more diagnosed in the years to come.

Here’s the short list:
-One kidney. The other one was covered in cysts and non functioning. It eventually shriveled to a nub.
-Cranial Synostosis. His scull fused together too early causing inner crainial pressure, headaches, etc. corrected via Crainial Vault Surgery.
-Tethered Spinal Cord. Surgically corrected.
-Chairi Malformation
-Hypoglycemia and Growth hormone deficiency
-ASD, VSD and PFO of his heart. Self corrected.
-sub mucus cleft pallet
-Russel Silver Syndrome
-PCD disease
-several urological issues resulting in many surgeries.
-Many Intestinal and motility issues: including Intestinal pseudo obstruction, neuropathic dysmotility disorder two Intussceptions (the intestines kilidoscope inside themselves resulting in a blockage and needs immediate medical attention) which all resulted in intestinal failure.
Case is fed vis J tube and through an IV in his chest. He’s had over 20 surgeries and has been under anesthesia 27 times. He’ll be having his another surgery soon and more in the future.

So....for all of those curious about Case that’s the short version. Everyday can be challenging and Case has stayed more nights at the hospital than I can count but he always has and always will live life to the fullest!

Thank you for loving our Very Special Case!
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Donations 

  • Janet Stewart
    • $20
    • 4 yrs
  • Sydney Bologna
    • $25
    • 6 yrs
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Organizer and beneficiary

Lisa Barnhart Razza
Organizer
Derry Township, PA
Elisabeth McNulty
Beneficiary

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