- T
- L
- K
I first want to say I thank God for his work and blessing my family. I give him the highest praise. Please read this to the end.
This is our story...On June 15, 2016, I was blessed with a 6lb 1oz baby boy, named Brock. As soon as he was born I knew something was wrong. The nurses wouldn't let me see him and they were not saying much. They eventually brought Brock over to me for about 2 seconds and he had to be taken to the nursery right after that. For hours no one could tell me what was going on with my son, and because I had a c-section there wasn't much moving around that I could do. Finally, when I got settled into a room a doctor came in. He stated that they had to take my son to MUSC (Medical University of South Carolina) right then and there. I was told my son did not have any testicles and they did not know if he was a boy or a girl, even though he had male parts. We were told he had 1 kidney, pinpoint pupils and cysts on his brain. His soft spot came down to his nose, and he was in respiratory distress. All of this was a surprise to me and my family, because I pretty much had a great pregnancy and no problems during my ultrasound besides low blood platelets, that I had to have checked every 2 weeks. They had to call Meducare to have him transported to MUSC that moment. So before he left they brought my baby to see me in a plastic incubator and all I was able to do is put my hands inside to touch him.
He was placed in the NICU there. The first night he was there my uncle, whom is a Minister and has a life changing testimony of his own was up there with my son praying for him. He asked a nurse if a kidney for Brock would ever develop. Her response was, "30 years of being a nurse I have never seen it happen." (Remember this for later in the story)That had made my uncle so upset, because he knows we believe in God and that was not the truth!
Now normally anyone that knows if you have a c-section, you're supposed to be in the hospital atleast 3 days. I could not bare the fact that my baby boy was at an entirely different hospital and I wasn't getting any answers, so I left the hospital that Friday morning (with my doctors permission of course.) And I had my boyfriend take my straight to my son! I held him he entire day I was there! It was like the both of us were in heaven.
So the next morning we had to meet with the group of doctors that told us a list of things that were going on with Brock. They had been waiting on the genetics test to tell us if he was a boy or a girl, and 20 other labs they had ran to see what was going on. They told me because Brock had no testicles, he was not producing sodium and he adreline glands were going to crash by his 6th day of life. (Never happened) He also only had 1 kidney after doing a 2nd ultrasound! When I tell you all me and his father and our families could do was pray! Brock was taken down to the level 2 nursey that same day because he wasn't technically in need of critical care.
While his stay in the level 2 nursery, I was at his bedside EVERYDAY ALL DAY! Not a day passed that I wasn't there. And recovering from a c-section I can say it was really tough. Brock was labeled as failure to thrive and had isssuing feeding. But I continued to pump my milk for him, even though he was unable to feed by mouth. Before we were pressured into getting Brock a gtube placed into his stomach, the doctors had ordered a 3rd ultrasound just to make sure his disgestive tract was working correctly. To my surprise this ultrasound tech found my son's 2nd kidney and his testicles!! Something the doctors and nurses had previously told us he would NEVER have! All I could do was thank God! He was doing his work on my son. He had a gtube placed and went to the infant care unit. By this time, we are thinking this is over we can take our baby boy home. Not even 24hrs after his surgery Brock broke a fever. And they ran labs once again and gave him a spinal tap. Everything came back negative. Brock was able to come home July 9th, a month shy of him being 1 month.
Not even a week later Brock had to be rushed back to the ER, the scariest time of my life and I'm sure my sister's. She came over and was feeding Brock by mouth and he stopped breathing! She was 9 months pregnant btw at this time. Brock had turned blue, and his body went limp. All I could do was start CPR on him. After breathing into his mouth and compressions he started coming back. All I could do was cry and once again start praying. If I wasnt on my toes I could have lost my baby once again. Once again that night they had done a spinal tap, to rule out infections ect. He was fine. They sent him back home. Now by this time my FMLA for my job was running out and I had to make a decision.
On Aug. 11th Brock was scheduled for eye surgery, his pupils where small and they were not getting any bigger. Brock went into surgery, breathing on his own, off oxygen, and doing as well as I had ever seen him. The surgery was only supposed to last 2hrs, no one came to speak to us during to let us know what was going on. So as a mother I began to panick. I had them call and see what was going on. His surgery lasted 4 HOURS! When the surgery was over no one came to speak to us again to let us know how things went. We got him back upstairs and he was peacefully sleeping. So we took my daughter downstairs to get some lunch. When we walkes back upstairs to him there were about 50 people in his room. Brock's stats were dropping and they didn't know why! He had to be intubated and place on a breathing machine. To make this long story short the doctors had a very hard time intubating my son, in which they were JAMMING the breathing tube down his throat during surgery to give him anesthesia and just kept closing his airway. He's throat was almost swollen shut! On top of everything else they were unable to get him line for and IV and had to give him a central line during surgery. All of which I was unaware of. Out of all of this my son had ended up with me having to give him shots twice a day everyday because from the central line he developed a blood clot and a trach in his throat because of the hospital's carelessness. He will have to have the trach until he is atleast a year old because of the damage that has been done on my baby boy.
Since this, he has been placed back in the hospital after going into respiratory distress once again and had to be rushed to the hospital, even with the trach, Brock's tongue turned black and I knew his couldn't breath. This time has is on a ventilator and they have now recently discovered something going on with his spine in the upper part of his neck in which he is going to have to wear a neck brace for a month.
I have had to quit my job to care for my son, and I also have a 5 year old daughter, Arionna, who needs me to be there for her as well. It has been MONTHS since I have had any type of income and it has been a struggle to get back and forth to the hospital to see him. And the holidays are coming up as well and my daughter's birthday Dec 8, whom has been the biggest supporter, and world's best sister going through all of this! Our families have been helping as much as they can but I'm asking for some more assistance. If anyone could find it in their hearts to help bless my family with anything we would greatly appreciate it. Also if everyone could continue to keep my son and family in your prayers. He's getting better by the day and my boy is a fighter, stronger than anyone I ever seen fight! They are finding things out little by little! Thanks for everything!







