We are fundraising on behalf of Zander and Kelly for their handsome & smiley young boy, Elliot.

Elliot, affectionately known as Elli was recently diagnosed with Spinal Muscular Atrophy Type 2 (SMA TYPE 2). This extremely rare genetic muscle wasting disease effects the part of the nervous system that controls muscle movement/function. It is a loss of important cells in the spinal cord known as motor neurons. Over time the breakdown of these neurons lead to decline in muscle size and strength.

Up until 5 years ago Kelly and Zander would of been advised to “make him happy” before his decline, which is extreme for SMA kids between the ages of 5-7. From then he would of needed palliative care. Thankfully, there is now a treatment called nusinersen via lumbar puncture. As Kelly & Zander like to call it “superhuman serum” as it makes him stronger! After Elli’s first 3 treatments two weeks apart, he will then have maintenance doses every 4 months for the rest of his life. It will take a big team of specialists including neurologists, speech therapist, physio, genetic counselor, dietician, occupational therapists among others.

We ask for any help to make this journey for Kelly & Zander financially easier so they can focus on tackling childhood with these uncommon obstacles. The money will go towards equipment needed for the home, new car that can accommodate Elli’s baby wheelchair and other treatment related costs.

Thank you for supporting this beautiful family!