Family with MD Fredricks Ataxia

Hello, ...my name is Meg Pelletier-Tramuta.   For the past 25 years,  I have cared for my three siblings;  Michael, 54, Marylynne, 52, and Timothy, 47 who suffer from a disease called Fredericks Ataxia, which  is a genetic form of MD.  Also, I have a sister, Ellen, 51, that has advanced stages of MS.   Every day, the need is astronomical for their care and expenses...food, clothing, toilietries, etc. etc. etc. 

For those who have never heard of this disease, please know it is extremely debilitating.  It is chronic pain, speech impairment, paralysis of muscles, curvature of the spine, body spasms, and the overall inability to care for oneself.  Yet the brain is normal and totally functioning!  They desperately wish to live as independently as possible, and without the proper funding they will go into state run nursing homes, which would definitely decrease the quality of their care.  They are critically in  need of daily physical therapy to help with the constant pain brought on by atrophy, not to mention the daily need for hygeine, nourishment, and all the details of life.  Even without the use of cable t.v. and computer,  they would have no access to the outside world.  I could go on.....but I think you get the idea.  Please.  They are in the final stages of their lives, and I want this time to be the best it can be for them.   I need your help.