Jarrett is saving for a walker
Donation protected
Background about Jarrett's Disease.
Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A classification system of different types of OI is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few or as many as several hundred fractures in a lifetime.
Prevalence
While the number of people affected with OI in the United States is unknown, the best estimate suggests a minimum of 20,000 and possibly as many as 50,000.
Diagnosis
OI is caused by genetic defects that affect the body’s ability to make strong bones. In dominant (classical) OI, a person has too little type I collagen or a poor quality of type I collagen due to a mutation in one of the type I collagen genes. Collagen is the major protein of the body’s connective tissue. It is part of the framework that bones are formed around. In recessive OI, mutations in other genes interfere with collagen production. The result in all cases is fragile bones that break easily.
Jarrett Steele was born on March 24, 2005 with this rare disease called Osteogenesis Imperfecta (OI). He is as aware of the world around him as you and I. He feels his bones shatter the same as you and I would, only more often. Throughout his childhood Jarrett has traveled to Vanderbilt Children's Hospital to have metal rods wedged into his delicate legs. The collective pain Jarrett will endure in his life will make any of our toils seem insignificant. But the space between the hurt is filled with smiles. As you meet or see Jarrett, he never stops smiling. We hope to only improve Jarrett's quality of life with this device and help educate the world about his disease.
He is my little cousin and I was hoping to surprise him with a walker for his therapy. His family has been requesting this device since he was around four years old and has never been granted it through insurance. He has never been able to walk. He needs this device to help support himself and give him the chance to finally get out of his wheelchair. He has a very rare problem and he is one amazing boy.
Please help donate if possible. As always, we are eternally grateful for all of the love, prayers and support we have received from everyone. May God Bless You All!!!
Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A classification system of different types of OI is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few or as many as several hundred fractures in a lifetime.
Prevalence
While the number of people affected with OI in the United States is unknown, the best estimate suggests a minimum of 20,000 and possibly as many as 50,000.
Diagnosis
OI is caused by genetic defects that affect the body’s ability to make strong bones. In dominant (classical) OI, a person has too little type I collagen or a poor quality of type I collagen due to a mutation in one of the type I collagen genes. Collagen is the major protein of the body’s connective tissue. It is part of the framework that bones are formed around. In recessive OI, mutations in other genes interfere with collagen production. The result in all cases is fragile bones that break easily.
Jarrett Steele was born on March 24, 2005 with this rare disease called Osteogenesis Imperfecta (OI). He is as aware of the world around him as you and I. He feels his bones shatter the same as you and I would, only more often. Throughout his childhood Jarrett has traveled to Vanderbilt Children's Hospital to have metal rods wedged into his delicate legs. The collective pain Jarrett will endure in his life will make any of our toils seem insignificant. But the space between the hurt is filled with smiles. As you meet or see Jarrett, he never stops smiling. We hope to only improve Jarrett's quality of life with this device and help educate the world about his disease.
He is my little cousin and I was hoping to surprise him with a walker for his therapy. His family has been requesting this device since he was around four years old and has never been granted it through insurance. He has never been able to walk. He needs this device to help support himself and give him the chance to finally get out of his wheelchair. He has a very rare problem and he is one amazing boy.
Please help donate if possible. As always, we are eternally grateful for all of the love, prayers and support we have received from everyone. May God Bless You All!!!
Organizer and beneficiary
Bailey Simpson
Organizer
New Market, AL
Amber Steele
Beneficiary