Save Alizay

Summary: WE need your help. My cousin's young daughter, Alizay, has been seizing for months. Her dad is a decorated soldier in the army, and their base's water supply was contaminated by jet fuel in Hawaii. That is when she started seizing multiple times a day. Today she almost died. We are looking to raise money for travel and medical costs. We want to bring her home and to the best medical staff on the mainland. The family needs your family's support! Any donation large or small is appreciated and 100% goes directly to the family.

 

The local news station picked their story up. You can see the report below:

Local News Story on Alizay

UPDATE from DAISY: This is what my family needs as of feb 24th at 4:15pm asap. First we need second opinions asap from non military doctors! Second, we need to be tested extensively for the toxicity poisoning! Our whole family! Third, once we have these both back, we need a compassionate reassignment to the best medical staff my daughter can get on the mainland!

Share away as much as you can!

And from the bottom of my heart, truly thank you from the stickney family for the help people have offered all over the United States! It’s been truly a miracle the amount of research, headway, and out pouring of love, we’ve received in the last 48hrs!!!! We will forever be great full

 

Below is a post from Alizay's mother that gives more details into the heartbreaking and desperate situation.

 

Be warned, what I’m about to write is shocking and the pictures are heart breaking.

Zay has been diagnosed with POTS (postural orthostatic tachycardia syndrome)

No school or work for her. Constant watching. Everyone is always ready to catch her. She faints a lot. Every single day. She has the most violent, traumatic non epileptic seizures. She hits and screams and cries during them. Even though she has no control over what her body is doing, she remembers almost all of her seizures, which is just shitty on so many levels. She pinches herself and her hands have to be held away from her body. Sometimes after seizures, she acts like a little kid for hrs. Or she’s really mad. When she does this, she never remembers. She wonders off if we look the other way and then is confused. Which is crazy scary! These are black outs and brain fog. Extreme fatigue and insomnia. She has so many triggers. Sitting up, standing up, stairs, elevators, flashing lights, tunnels, heat, laughing histeraclly, getting hurt even if it’s minor. Doing to much. Not doing anything.

We are living in a nightmare. It’s all encompassing, exhausting, and hands down, the worst thing our family has ever gone through. We will all be traumatized by this for the rest of our lives. And no, it’s not over. We dont even know if it will ever be over. And it hasn’t gotten easier. Everyday, it’s ever evolving, changing, constantly taking our breaths away and making our hearts continuasly ache.

And the military has the worst health care system, Tricare. They have failed her in so many ways. Failed her parents. They will be held accountable for there negligence.

And this house we call our home? We still don’t have clean water. We still have to shower at a hotel. The navy has poisoned our family with jet fuel. These homes should be condemned. They will be held accountable.

Yes, we have a diagnosis. Yes, it’s a step in the right direction. But do you even know what POTS is or have you ever heard of it? No? Do you know why? Because it was only discovered in 1994 and has very little research. Most doctors don’t even know how to treat it, let alone, inform the patient and parents of the do’s and dont’s. Cause they don’t know them! We have had to learn from doing our own research. We went camping this weekend, thinking it would be good for everyone. On Saturday I found out the number one worst thing for people who have pots is THE HEAT! She was diagnosed on January 23rd and no one thought to warn us!? We live in freaking Hawaii for gods sake!

Our family has been in “crisis management mode” for 3 months I don’t answer phone calls anymore. I don’t respond to texts. I don’t have the required energy to talk about how everything is just getting worse. And no, we are not holding it together. We are breaking.

Please send any good vibes and prayers. Over the next month, we are going to fight tooth and nail to get our baby the care she needs. The treatment no one’s talking about. Changes are in store for us. This is no longer sustainable.

And please share my post to bring more awareness to this horrible situation!!!