Please don't be sad when you read my story. I will try to remember as much as possible as to what happened.
On December 2, 2016, I went into the hospital to have brain surgery for removal of two tomors. The tumor is called Von Hippel Lindau (VHL). I was suppose to stay in the hospital for several days and go home. I didn't go home as planned. I was awake and alert when my doctor told me that he didn't get out all of the tumors. Then on December 5, I went back into surgery and have the other tumor removed.
Well, things didn't go well. I never woke up mentally. But I was there physically. My soul left my body. All there was left was an empty host. The host body can do what was command but not fully undersatand. I can sense that I didn't have a body cause I was in a different plain. It was like I was ready to move on. The comfort setting was the hospital surrounding. I was floating in the hospital searching for my body. I did see people searching for something. But I remember the number 4042. I was in the ICU room 4042.
Around January 18, 2017, I woke up. A lot has happened while I was out. I got a VP (ventriculoperitoneal) shunt in my head. Some how water devlope on the brain (hydrocephalus). A tube feed on my stomach, could not swallow on my right side, and saddly I CAN'T WALK.
I had Speech Therapy, Occupational Therapy, and Physical Therapy while I was in the hospital. I did't leave the hospital until February 23, 2017. I was hospitalized for almost three months. When I was out of the hospital, I had rehab without walls for five months. They were Speech Therapy, OT, and PT that came to my home. I was sick and vomiting at night. I don't know why.
In August '17, my upper and lower back felt like they were on fire. From the MRI, there were tumors in my spinal cord. The doctor removed 80% of the tumors. My back has not healed properly. I felt pain constantly. Some days the the back pain was a 7 out of 10. It has never gone down below a 5.
It has been a year since all of this has happed to me. I now have PT twice a week at the hospital. My neighbor wheel's me there and back. I live close to a mile to the hospital. I don't get a lot of support.
Family & Freinds since I have been hospitalized and trying to recover from surgeries, I am asking for donations to help me pay for medical bills. No one should go through what I am going through.
ALL I KNOW IS THAT I WILL WALK AGAIN SOMEDAY.
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