
Noah's Journey To a Normal Life
Donation protected
Noah Hallam is 10 months old and hasnt had the best start to life. Before being born he was diagnosed with hydrocephalus which is fluid on the brain. At 5 months old Noahs family noticed his head was growing into a different shape so his parents Bree and Steven made an appointment with his pediatrician who sent him for an ultrasound on his brain. The results of this scan showed noah had fluid in 3 spots instead of 1 as was first diagnosed.
Further testing revealed Noah had several surtures fused in his brain which is known as craniosyntosis. Craniosyntosis is a rare condition which means his entire skull sutrures and fontanelle had fused together after birth instead of at 2 years of age. This has left Noahs brain with no room to grow so his skull is continuing to grow out of shape and causing pressure on his brain. Due to this condition Noah also has chronic weight loss due to projectile vomiting along with developmental delays such at 10 months old still not being able to sit on his own, crawl, pull himself up and bear weight on his legs.
Noah had brain surgery on this 7th of April this year to reconstruct his entire skull, this procedure is known as Cranio Vault Remodelling.
Noah and his family have been to Adelaide for specialist appointments and surgeries over 8 times in his already short life with many more to come.
Im starting this fundraiser to help this family who are close friends of mine ease a bit of the financial pressure where all the money raised will go towards the many trips and surgeries Noah has in the future. Noah is returning to Adelaide on the 14th of July for appointments with his Craniofacial, Ear nose and Throat, Respitory and pediatrician specialists and will continue with these appointments until he is well over 18. He has a team of over 11 specialists who are dedicated to the best possible outcome for this gorgeous little boy who just needs a litte help along the way. All donations are very appreciated and if your not in a position to donate please share with your friends and family to raise awareness. I thank you for taking the time to read a brief insight into Noahs battle so far. Ana Mortlock
Further testing revealed Noah had several surtures fused in his brain which is known as craniosyntosis. Craniosyntosis is a rare condition which means his entire skull sutrures and fontanelle had fused together after birth instead of at 2 years of age. This has left Noahs brain with no room to grow so his skull is continuing to grow out of shape and causing pressure on his brain. Due to this condition Noah also has chronic weight loss due to projectile vomiting along with developmental delays such at 10 months old still not being able to sit on his own, crawl, pull himself up and bear weight on his legs.
Noah had brain surgery on this 7th of April this year to reconstruct his entire skull, this procedure is known as Cranio Vault Remodelling.
Noah and his family have been to Adelaide for specialist appointments and surgeries over 8 times in his already short life with many more to come.
Im starting this fundraiser to help this family who are close friends of mine ease a bit of the financial pressure where all the money raised will go towards the many trips and surgeries Noah has in the future. Noah is returning to Adelaide on the 14th of July for appointments with his Craniofacial, Ear nose and Throat, Respitory and pediatrician specialists and will continue with these appointments until he is well over 18. He has a team of over 11 specialists who are dedicated to the best possible outcome for this gorgeous little boy who just needs a litte help along the way. All donations are very appreciated and if your not in a position to donate please share with your friends and family to raise awareness. I thank you for taking the time to read a brief insight into Noahs battle so far. Ana Mortlock
Organizer
Ana Mortlock
Organizer
Whyalla DC, SA