Hello family and friends! I am starting this gofundme campaign in the hopes to provide support to Sarah and Kameron with Koa's continuing medical bills. Our beautiful Koa Kameron Hargove was born April 29th 2025 at 2:22pm. Admitted to the NICU due to increased work of breathing and full body bruising, he remains in the NICU as of today.

Through Koa's time in the NICU, he's undergone numerous tests and procedures in attempt to determine an explaination for the rare brusing and increased work of breathing as a full term baby. He was also born with a small, pericardial effusion (fluid around the heart) which, through weekly ultrasounds, has not been determined to impact his heart's function, but requires continous monitoring. He was also on 24/7 oxygen support and a feeding tube.

Through the first month of his life, no tests were able to offer the doctors an insight into the cause or treatment of Koa's symptoms. However, he was able to wean down to a lower oxygen support and off the feeding tube to eventually get discharged on home oxygen. After a week at home, with his big sister Kinsley, Koa suffered an apneic episode causing him to be readmitted to the hospital.

Upon readmission, Koa required 6 liters of oxygen support on a CPAP machine with still no answers as to why. This led to a transfer to Rush Univeristy Medical Center downtown. While at Rush, Koa is on 24/7 oxygen support and a feeding tube. He remains under the continuous care of the Neonatologists, Pulmonologist, Cardiologist, ENT and Genetist.

A genome panel of Kameron, Sarah and Koa finally revealed Koa was born with a partial deletion in one of the genes in his genome. This gene abnormality explained Koa's bruising at birth, affecting the way his blood vessels respond to physical stress. The gene abnormality also impacts his Lymphatic system which drains excess fluid from our bodies. This explains the fluid around Koa's heart and some fluid retention in his lungs.

The doctors believe this extra fluid retention impacts Koa's increased work of breathing but isn't the full explaination. This resulted in a scope being done to view his airway. The scope revealed partial paralysis of Koa's vocal cords. It was determined an MRI and Bronchoscopy would be needed to get a more detailed view of Koa's nerves and airways to determine what treatment or procedures may be required to help him improve and get home.

Prior to the MRI and Bronchoscopy, Koa caught a cold. He has since recovered from the virus but, due to hospital protocol, is still now awaiting clearance for the doctors to complete this next round of imaging.

While waiting for his next procedures, Koa has gotten down to 2 liters of oxygen support and continues gaining weight and growing strong. He works with Speech Pathology everyday to play, read stories and hopefully transition back to bottle feeding. He loves looking at his new toys in his room and listening to Disney songs. Kameron and Sarah try to spend time with Koa at the hospital at least 5 days out of the week inbetween work and home life, while also making summer memories at home with Kinsley.