Alex's Prosthesis Story

JUNE 2021 

Baseball has been a highlight for Alex this last couple months. She has gone from using her wheelchair in the first game to batting and hopping around the bases without crutches the last game! She is getting so strong. Next Monday she will receive her prosthesis in Texas so we will be heading back that way next weekend! She is incredibly excited to begin learning to walk again with her new leg. The blog will be updated with her progress! Thank you for being a part of her story in this way.  --- Anna Morgan, Alex's mom










FEBRUARY 1, 2021

It's TODAY.  AMPUTATION day is here and Alex is checked into the hospital in Dallas as I type.   She is in a room being prepped for the amputation surgery.  Please please be in prayer today for this sweet sweet child with an unstoppable spirit.   Please please be in prayer for her parents as they go minute by minute through the hours of the lengthy surgery.  And for her siblings and grandparents back at home. If you want to assist them with finances, this is the place.   They are grateful to the bottom of their hearts for all your love, help and prayers.













THANKSGIVING 2020 -  YOUR GENEROUS HELP IS  -VERY-  NEEDED FOR LITTLE ALEX

PLEASE SHARE
NOVEMBER 24

THANKSGIVING WEEK - After many delays, at long last, Alex's AMPUTATION surgery has been
rescheduled and it is close at hand.  The surgery will now take place in Dallas, TX at Scottish Rite
Hospital on DECEMBER 14. What a difficult year it has been for this dear child and her family! So many have walked along the painful road with them and that has been huge.  Now the NEED for support is
imminent.  The house has been renovated to make movement through out possible for SIX YEAR OLD
Alex when she is able to return to Tennessee sometime in 2021.  In the meantime, many needs still
remain outstanding as the surgery fast approaches,  and life changes forever for little vibrant, beautiful
Alex, her siblings and family. 

Can you give - or give again?  Will you -share- for those who would still like to join the arduous
battle for health, healing and restoration of childhood's ability to run and play, albeit with a
PROSTHETIC leg after Alex heals from her AMPUTATION?  She is brave and ready, but she needs an 
army of support with her.

Please, join and GIVE as you are able!

Alex and her parents and siblings are so so THANKFUL for you and the team that has come alongside
them.  They could never have walked this road alone. 

9/2020- This has been a super hard road for this family and little Alex.  The most recent news is that
 
SIX YEAR OLD Alex  has a new AMPUTATION SURGERY DATE,

NOVEMBER 11,

with THE ONE DOCTOR WORLDWIDE who has the ability to perform the kind of surgery she needs.

PLEASE reach out with your resources

to SUPPORT HER IN THIS RARE SURGERY and long long recovery road.   

  It has taken many months, trips, doctors appointments and hospital visits to come to the final and best decision for treatment for Alex's rare disease.  The short version is that in November,  doctors at Sinai Hospital in Baltimore, MD,  will  remove her leg from the hip.

Because of this extremely rare "Vanishing Bone Disease" - Gorham-Stout disease -, Alex's femur is so diseased and weakened that nothing can be done to save it .  In the complex,  12-15 hour surgery, the lower portion of her leg, minus the entire femur, will be reattached backwards, after the whole leg is removed,  so that her current knee joint will become her hip joint and her current ankle will become her new knee, below which, in time, she will have a prosthetic calf and foot.  Mind boggling and gut-wrenching is the only way to describe this news. 

But for Alex, this is joyful news!  What???? 

For over a year, this dear little shining one has struggled to live life fully as an exuberant child in spite of breaks, braces, casts, crutches, arm crutches , walkers, wheelchairs and more.  She is embracing the joyful hope of one day being able to run and play again without  the constant fear of pain and crisis.  She attended "Princess Dance Camp" just a few days ago.  Yep, she still dances on her arm crutches and good leg!  If it blows your mind to read this, get in line.  This little one is a constant amazement to all she meets.

But she and her family NEED YOUR HELP.  Their year plus of constant medical needs has taken a deep toll on the whole family and really, the journey to recovery is just beginning.

The needs are great:

- Medical care of this magnitude involves enormous cost.

 -  This family of 8 live in Murfreesboro, TN. The upcoming surgery will require multiple trips back and forth to Baltimore, by car and by plane, for her parents and Alex.

-  The stay in Baltimore will be a minimum of 6 weeks for these self-employed parents.  No work, no income.  Obviously, this is a point of great concern.

- They will be able to stay in a hospitality type house across from Sinai Hospital which is reduced in fees but not free.

- Their own home has to be modified to allow Alex to move around when she returns home to Tennessee.  They have to have an accessible entrance, bathroom, flooring, etc.   After surgery, Alex will have a cast which stabilizes her legs and includes her torso for 12 weeks.   It goes without saying, this will greatly increase difficulty of movement.

Can you help?  Would you share this page to allow others to help as well?  Please open your heart and your pockets for brave little Alex so that she can begin her journey to healing and her own new wholeness. 

For more in depth details, you can read her blog at this link:

baemorgan.wixsite.com



ORIGINAL STORY:
I want to share a tale of a little fierce warrior. A little 5 year old girl who has such a rare disease that there are only 300+ documented cases of this disease throughout the world. The terrible but easy-to-remember name of the disease is "vanishing bone disease", so named because that's what it does. It makes bones disappear. Alex, a little blonde cutie with a smile that doesn't quit and a spirit that shines like gold, has fought a battle with this disease for nearly a year. That's nearly 20% of her short life. In these few months, she's had multiple full leg casts, a tiny little-person walker, a tiny little-person wheelchair, as well as an amazing little bike that she can peddle with her hands, so that she can still play with her 5 siblings when they are riding their bikes. She has danced, using some of these devices, in a performance of The Nutcracker at Christmas. But she can't jump on the trampoline, or run, or climb or..... so many other things children must do. She has been in and out of the hospital, specialists' appointments across the country, tests, labs, MRIs, needles, anesthesia and on and on. This spunky little one faced the grown-adult nurse for her last blood draw and told him , "I have rules! "( for you to go by, sir.) And those weren't scripted words. She was standing up for herself. At 5, to a grown man. But y'all, her battle isn't nearly over. She's on chemo now...no, it's not cancer but it's an evil disease that must not be allowed to spread further in her leg. She being treated and seen by a team of doctors at Vanderbilt. And that ain't cheap.... it's going to be a long long road. I'm attaching the blog about her for 2 reasons. One, you can learn more about this little sweetheart. Two, YOU CAN HELP this warrior-child in the battle. Will you read and see how you are led to offer help? They need all the prayers, financial support and encouragement they can get. And you will be glad you did...she is a rock star, a shining tiny warrior-ess who needs bolstering for the days to come.

baemorgan.wixsite.com


If you are willing, share this as well, so others can join forces with this dear one and her family .