In November of 2015 I was heading to the hospital to find out the sex of my baby! I was beyond excited. Laying there on the table watching this little miracle inside me, it takes your breath away. When the ultrasound technician told us it was a boy, I couldn’t even explain to you the JOY I felt. I’ve finally gotten what I’ve always wanted a girl and a boy. As the ultrasound continued getting all the photos to make sure baby is growing properly, the ultrasound technician excused herself. At this point we had been in the room for a while already. When she returned with my doctor my heart sank, I yelled for my mom. Yes, 24 years old I was scared to death and needed my mother. My doctor than proceeded to tell me they had found something wrong with my son. How could something be wrong though when I just seen this beautiful little miracle moving all around in me. I could feel him moving. I started crying. He said something was not right with his left leg. That they’d be sending us downtown for a 2nd level ultrasound. I left the hospital that day broken.. I was angry. I was hurt. I was scared. I had lost all my faith, I yelled at God, I cursed at God. I thought how could an all loving God do this to my baby? How could he put something so innocent through this? I blamed him, I blamed myself. I was TERRIFIED. I went to my parents that day. I fell to the ground in tears hardly able to breathe. My dad fell down with me and held me, he tried to comfort me the best he could. Unable to keep anything down I just laid on my mom’s lap sobbing as she held me, both my parents telling me we’ll get through this together. My poor daughter only 3 at the time didn’t understand. That morning was such a happy morning for her. She was going to find out what her baby was. Then she just watched everyone cry and not know why. Do you know how hard it is to try your best, I mean your VERY best to keep a strong face for your 3 year old when you yourself can’t even face the world? It’s near impossible. We went to so many ultrasounds, so many doctors’ appointments. We were told he had amniotic band syndrome at first. I remember during one of my 2nd level ultrasounds they told us my son could have down syndrome and a whole bunch of other terrible things. One of the things could possible kill him before he was even born. The doctor asked if I wanted to termin.. I stopped him right in the middle of his sentence. My faith in God was restored. I told him, “my baby is perfect the way he is. I would not terminate my baby because he is not going to be born “normal”.” After several test and more ultrasounds and tons of prayers we got the call he was COMPLETELY HEALTHY, the only thing wrong was his leg. Which we could deal with, no it’s not idea but we can manage and he’ll have a normal life. The day finally came March of 2016 I went in for my C-section. After they took my son out they held him up over the curtain. I cried so hard. HE WAS PERFECT. Absolutely perfect, he was health and beautiful. When my son was around 3 months old he went for an x-ray. The first hospital we went to gave us NO hope they said it was still amniotic band syndrome and they’d have to amputate. The doctor was cold, heartless. Told us not to get our hopes up on saving it. When I asked about a second opinion she told me she didn’t think it’d differ from hers but if it gave us comfort then go for it. I WENT FOR IT. It was the last bit of hope I had to save my sons leg. I kept hearing of this amazing hospital in St. Louis. It was called Shriners. I believe that God sent us here. October of 2016 was his first appointment at Shriners. The people, the atmosphere, I felt like this was the right place. I kept hearing about it while I was pregnant and after he was born. I feel deep down God had lead us here. He wanted Nicholas to come to this hospital. His first appointment and we some hope they’d be able to save his leg! We left with so much joy. My heart was exploding with happiness. We made another appointment for another x-ray, this one would determine the course of his future. Sounds pretty scary right? I can tell you it was beyond scary but I was also ready for some answers as to what my sons future would hold. February 2017, today was the BIG day. Heading to Shriners that day was nerve wracking. God AGAIN BLESSED Nicholas. They told us they are able to save his leg! He’ll require multiple surgeries until he has reached maturity the first will be July 12th of 2017. So please PRAY for my son. Have everyone you know pray for him. Please pray for me too. I have been working on myself to be at my strongest spiritually and physically for my children. I know when this day comes it’ll be the hardest thing I’ll ever have to do. I don’t know how I’ll be able to let go of him, knowing what will happen. My heart is so heavy tonight I can’t even sleep. This nightmare is far from over for my sweet baby. As a parent you try your hardest to be so strong for them. When you’re scared to death this is beyond hard. I will keep everyone posted as best as I can on this Page. Thank you for taking the time and reading Nicholas’ journey so far. Please, please I beg you to keep him in your prayers.
After our visit on 07-07-2017 for Nicholas' consultation we learned we'll have to make another trip down to St. Louis for a cast change in three weeks to do a cast change. Then after three more weeks for a cast removal/another surgery to get a metal brace on, that'll screw into his leg. He'll have to have three more surgeries to length his leg after this. The first of those will start when he's 3. To keep updated follow his Facebook Page
Prayers For Baby Nicholas
As a single mother of two I'm doing all I can. I just need a little help with this month's bills and next months as I will not be working half this month. I don't typically ask for help. I don't like to. I'd rather earn the money myself. I just can't do anymore though, I've done all I can possibly do.. So any amount is so greatly appreciated. Thank you very much.
- Lauren Moles
- Janet Umanzor
- Diana Cotton
- Shane Fischer
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