xavier's warriors

I have a genic disorder called Tuberous Sclerosis Complex aka TSC. This is a rare genetic disorder that causes tumors to grow on my brain, heart,kidneys, eyes and lungs. I have several on my brain that cause me to have seizures.  We have been on many medications  to stop  these that didn't  help . As you  see we have been on this long journey  for a while.  Since the start of my campaign I have had 3 brain  surgeries  . My family and I travel to Memphis and Austin tx from pa for these . We just  returned from Memphis 6 mth post from my last brain surgery on November.  Which  my family  all traveled and lived for 5 wks . So I could  stop having seizures  and enjoy my childhood.  We now have to return  to Austin for another surgery  on the left side of my brain.  It was a surprise to all of us . We thought  we were in the clear for a while.  But I have a tumor growing at a steady pace that  will block the fluid  in my brain . My daddy has to take time off work again so we can travel . We save everything  we can to travel . We need some help with travel expense  that can add up  and we will be in Austin  a few weeks for recovery after  surgery again . Any help would be a huge blessing to our family so very much . We are forever  grateful for all of those in our lives that support us on our continued  journey . Love Xavier and family.

Donations

  • DawnMarie Burrows 
    • $40 
    • 34 mos
  • Anonymous Donor 
    • $100 
    • 43 mos
  • Jerrica Clingerman 
    • $150 
    • 43 mos
  • NICOLE ONEILL 
    • $100 
    • 43 mos
  • Anonymous 
    • $200 
    • 43 mos
See all

Organizer

Sue Ball 
Organizer
Coalport, PA
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