
Xavier's parents need help.
Donation protected
Hi my name is Lana and I am doing a fundraiser for my grandson. As a grandmother my heart hurts for my poor little buddy.
Meet Xavier! Or as he likes to be called, X!
X is the 4th child of Ronnie and Margaret Scharmann. He is a spunky 2, almost 3-year-old, who loves trucks and all motorcycles!! Xavier has three older siblings, Annabelle, Jaxon, and Willow, and one little sister, Olivia. When X isn't playing around with his siblings, he's riding his dirt bike every chance he gets! At just a week old, Xavier began projectile vomiting with every feeding. Doctors reassured Margaret and Ronnie that this was normal for babies and that he would soon grow out of it. However, just a few weeks later, Xavier was diagnosed with failure to thrive. Over the next two years, Xavier would be put through multiple procedures to try and get to the bottom of his swallowing disorder. Margaret, Ronnie, and the doctors had high hopes that a hernia repair would give Xavier the relief he needed to improve his quality of life. Unfortunately, X had two hiatal hernia repairs that would ultimately fail each time. Xavier's doctor was at the end of the line and unsure how to proceed.Finally, X was referred to a specialist at Shriner's Hospital in Sacramento, Ca where they tested Xavier's esophagus's motility. Xavier was diagnosed with a rare disease called Achalasia. This disease only occurs in every one out of a million people, and unfortunately, X is that one. Achalasia means that his esophagus can't contract muscles properly to get food down to his stomach. As a result, it's really hard for Xavier to eat without throwing up. Xavier has since had the same hernia repaired not once but twice more. Each surgery puts Xavier in the hospital anywhere from 1-2 weeks at a time. Xavier is still going through more testing to help his disorder.
Family has helped with many donations and time. His aunt did a walk to help raise money. We are at our limits.
Organizer
Lana Scharmann
Organizer
Fallon, NV