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William, Elisa and Maizy are very dear friends of ours and we created this Go Fund me account to help them raise funds to help pay for Maizy's medical expenses. Anything you may be able to donate would be greatly appreciated. Below is a little story of Maizy's journey.
Maizy was diagnosed with a heart condition called Cor Triatriatum Dexter (extra membrane dividing right atrium into two parts, causing her to basically have a third atria. Very rare....accounts for .1% of heart defects) and an ASD (hole between the atria) at three days old. She was sent to the NICU at UVA at that time thinking she would need heart surgery then. She was in the NICU there for a week where they decided not to operate then, but ended up having to keep her for eating problems because of constant vomiting. She was diagnosed with laryngomalacia (folded epiglottis which makes her have to work harder to breathe) and severe reflux. When Maizy came home from the NICU she continued to have trouble eating and growing because the reflux bothered her so much and she continued to vomit frequently.
At the beginning of Feb at her follow up cardiologist appointment it was determined she did need open heart surgery to repair the defect. So she went back to UVA and had the surgery on Feb 8th. Her hospital stay was 12 days at that time.
Maizy came home for a week and then she stopped wanting to eat because the reflux was causing her so much pain and her esophagus had become eroded. Medicines could not touch it. She wasn't gaining weight and was considered "failure to thrive". So she was admitted to Chippenham hospital, where William, Elisa and Maizy have been since Feb 26 (her 3 month bday). She was put on an ND feeding tube and was fed continuously for 24 hours a day to help her gain weight. She was still vomiting. On March 3rd she had Nissen Fundlopication surgery to help stop the reflux and had a G-tube (abdominal feeding port into the stomach) inserted. She is now being fed 24 hours a day by pump into that tube. They are still in the hospital and don't know when they will be leaving.
They will be going home with lots of equipment that they have to rent and she will require supplies for the feeding tube and the pump, along with in-home nursing care and visits from early intervention to help her meet her milestones. William and Elisa have had to take prolonged amounts of time off of work without pay to be with her in the hospital. Plus all the bills dating back to birth are really adding up.
Maizy was diagnosed with a heart condition called Cor Triatriatum Dexter (extra membrane dividing right atrium into two parts, causing her to basically have a third atria. Very rare....accounts for .1% of heart defects) and an ASD (hole between the atria) at three days old. She was sent to the NICU at UVA at that time thinking she would need heart surgery then. She was in the NICU there for a week where they decided not to operate then, but ended up having to keep her for eating problems because of constant vomiting. She was diagnosed with laryngomalacia (folded epiglottis which makes her have to work harder to breathe) and severe reflux. When Maizy came home from the NICU she continued to have trouble eating and growing because the reflux bothered her so much and she continued to vomit frequently.
At the beginning of Feb at her follow up cardiologist appointment it was determined she did need open heart surgery to repair the defect. So she went back to UVA and had the surgery on Feb 8th. Her hospital stay was 12 days at that time.
Maizy came home for a week and then she stopped wanting to eat because the reflux was causing her so much pain and her esophagus had become eroded. Medicines could not touch it. She wasn't gaining weight and was considered "failure to thrive". So she was admitted to Chippenham hospital, where William, Elisa and Maizy have been since Feb 26 (her 3 month bday). She was put on an ND feeding tube and was fed continuously for 24 hours a day to help her gain weight. She was still vomiting. On March 3rd she had Nissen Fundlopication surgery to help stop the reflux and had a G-tube (abdominal feeding port into the stomach) inserted. She is now being fed 24 hours a day by pump into that tube. They are still in the hospital and don't know when they will be leaving.
They will be going home with lots of equipment that they have to rent and she will require supplies for the feeding tube and the pump, along with in-home nursing care and visits from early intervention to help her meet her milestones. William and Elisa have had to take prolonged amounts of time off of work without pay to be with her in the hospital. Plus all the bills dating back to birth are really adding up.
Organizer and beneficiary
Elisa Hawkins
Beneficiary