Kylie and Family
Donation protected
First off I'd like to thank you for taking your time to look at our campaign. Our names are Jason Saxelby and Julia Cook. We recently added an addition to our family named Kylie Rogue Saxelby.
We learned at 20 weeks of Julia's pregnany that our little angel had a heart defect called Hypoplastic Right Heart Syndrome with Tricuspid and Pulmonary atreisa (Tricuspid atresia is a form of congenital heart disease whereby there is a complete absence of the tricuspid valve. Therefore, there is an absence of right atrioventricular connection. This leads to a hypoplastic (undersized) or absent right ventricle.), And Pulmonary Atresia (Pulmonary atresia is a form of heart disease that occurs from birth (congenital heart disease), in which the pulmonary valve does not form properly. The pulmonary valve is an opening on the right side of the heart that regulates blood flow from the right ventricle (right side pumping chamber) to the lungs.)
Since we found out, Jason has had to take alot of time off work every week so we could see all the specialist doctors for kylies condition, Jason will have to continue taking time off work for operations now and in the future, Jason being the only one working. Kylie was born on 12/1/15 and is an apsolutely amazing little girl. They put her on an IV of Prostaglandin which keeps the PDA (Patend Ductus arteriosus) open until her first of 3 surgeries. In PDA, abnormal blood flow occurs between two of the major arteries connected to the heart. Before birth, the two major arteries—the aorta and the pulmonary (PULL-mun-ary) artery—are connected by a blood vessel called the ductus arteriosus. This vessel is an essential part of fetal blood circulation. Little Kylie's first surgery will either be a stent in the PDA or she will need a shunt. A few months later she will recieve another shunt, and then at 3-5 years young, she will have another operation, most likely open heart surgery. Were not quite clear on what needs to be done at that stage yet.
We couldn't be more thankful for all the positive energy and prayers. Unfortunatly from all the time Jason has taken off work to be with us for support has taken its toll, And to add to it our insurance isn't covering all expenses medically. Due to only having one truck transportation is difficult. We are currently staying at the RMCH (Ronald Mcdonald Charity House) so that they can be close to their baby Kylie, especially julia while Jason works Mon.-Fri. to try to stay afloat. Bills are stacking and we need a hand. We hate to ask for help but we have no other options. The stress of what Kylie is going through is EXTREMELY overwhelming and these other stresses add to it and make things even harder to cope with. We cant even explain how thankful we are for all the support from our family and friends.
You guys mean the world to us.
Please Share Our Story
We Love You All<3
Thank You
Sincerely
Jason, Julia, Kylie
We learned at 20 weeks of Julia's pregnany that our little angel had a heart defect called Hypoplastic Right Heart Syndrome with Tricuspid and Pulmonary atreisa (Tricuspid atresia is a form of congenital heart disease whereby there is a complete absence of the tricuspid valve. Therefore, there is an absence of right atrioventricular connection. This leads to a hypoplastic (undersized) or absent right ventricle.), And Pulmonary Atresia (Pulmonary atresia is a form of heart disease that occurs from birth (congenital heart disease), in which the pulmonary valve does not form properly. The pulmonary valve is an opening on the right side of the heart that regulates blood flow from the right ventricle (right side pumping chamber) to the lungs.)
Since we found out, Jason has had to take alot of time off work every week so we could see all the specialist doctors for kylies condition, Jason will have to continue taking time off work for operations now and in the future, Jason being the only one working. Kylie was born on 12/1/15 and is an apsolutely amazing little girl. They put her on an IV of Prostaglandin which keeps the PDA (Patend Ductus arteriosus) open until her first of 3 surgeries. In PDA, abnormal blood flow occurs between two of the major arteries connected to the heart. Before birth, the two major arteries—the aorta and the pulmonary (PULL-mun-ary) artery—are connected by a blood vessel called the ductus arteriosus. This vessel is an essential part of fetal blood circulation. Little Kylie's first surgery will either be a stent in the PDA or she will need a shunt. A few months later she will recieve another shunt, and then at 3-5 years young, she will have another operation, most likely open heart surgery. Were not quite clear on what needs to be done at that stage yet.
We couldn't be more thankful for all the positive energy and prayers. Unfortunatly from all the time Jason has taken off work to be with us for support has taken its toll, And to add to it our insurance isn't covering all expenses medically. Due to only having one truck transportation is difficult. We are currently staying at the RMCH (Ronald Mcdonald Charity House) so that they can be close to their baby Kylie, especially julia while Jason works Mon.-Fri. to try to stay afloat. Bills are stacking and we need a hand. We hate to ask for help but we have no other options. The stress of what Kylie is going through is EXTREMELY overwhelming and these other stresses add to it and make things even harder to cope with. We cant even explain how thankful we are for all the support from our family and friends.
You guys mean the world to us.
Please Share Our Story
We Love You All<3
Thank You
Sincerely
Jason, Julia, Kylie
Organizer
Jason Russel Saxelby
Organizer
Cedar Park, TX