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Wynnie's Journey to Healing: A Plea from Her Heart
As Wynnie's mom, it's hard to put into words the struggles we've faced since the day she was born. From her tiny, fragile body struggling to breathe due to laryngomalacia to her severe feeding issues that left us questioning everything, Wynnie's life has been a testament to strength and resilience.
As she grew, genetic testing revealed that Wynnie has a rare chromosome mutation in the ARID1B gene, associated with Coffin-Siris Syndrome. This diagnosis shed light on her unique needs and strengths, including her developmental delays, intellectual disability, and physical characteristics.
One of the most challenging aspects of Wynnie's condition is her severe gut motility disorder, a complication of Coffin-Siris Syndrome that's made her life miserable. Despite our best efforts, we've exhausted two GI doctors, and it's become clear that Wynnie needs specialized care from a renowned expert. That's why we're turning to Vanderbilt's pediatric GI department, where the specialists have the expertise and knowledge to help Wynnie find relief from her chronic pain and discomfort.
Their team is our beacon of hope. We know they'll provide the care and answers we desperately need to give Wynnie the life she deserves. But, we're facing a mountain of expenses – travel, lost wages, hotels, food, and more. Our family car just won't make the trip, and we need your help to cover the costs.
That's why I'm asking for your support. We're trying to raise $1500 to make this trip a reality. Your contribution will bring us one step closer to giving Wynnie the relief she's been searching for. It'll mean the world to us – to Wynnie and to our family.
Will you consider helping us? Every little bit counts, and every little bit gets us that much closer to Vanderbilt.
Thank you for being part of Wynnie's journey.


