Wyatt Lucas Young Medical Expenses

Hi, my name is Chelsea Swift. Kindra Evans Young has been one of my best friends since 6th grade. At Owensboro Catholic Schools we cheered and danced together, we were bridesmaids in each other's weddings and we are still close friends today! Kindra and her husband, John, are both 2013 graduates of Owensboro Catholic High. John works at Alcoa and Kindra has always stayed at home to take care of their two boys, Dalton and Beau. Beau was born with down syndrome and has required a little more care. Their third son, Wyatt, was born on July 4, 2023. Wyatt was born with a rare genetic disease called Hurler syndrome. Kindra made a Facebook post today describing his diagnosis and treatment plan. I will share her post down below. Life for their family is difficult and it is going to get even more difficult. If you are able, please consider making a donation to help John and Kindra with future medical expenses. It would be greatly appreciated. Whether you are able to donate or not, please lift their family up in your prayers!!

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We would like to give everyone an update on our sweet Wyatt. When he was still in the NICU, we received results from his newborn screening, which is done on every newborn to test for rare genetic diseases. Wyatt’s test came back with abnormal results. Specifically for a disorder called Hurler Syndrome (or MPS-1). He then had further tests taken, and they also came back positive for this syndrome. I have pictures to describe what this disease entails because it would take too long to type out everything. I’m sure no one has heard of this because we hadn’t either. They just recently started testing for this specific disease on newborn screens in the last 6 years. There is no cure for this, but there are treatments that he will undergo to prolong his life and give him a better quality of life. He will go through weekly enzyme replacement therapy through IV starting tomorrow. This will continue until October. In October he will receive a bone marrow transplant and then receive another 8 rounds of weekly IV treatment. We know with these treatments people have lived to be in their mid 30s and hopefully people have lived even longer that we don’t know about. This will all be done in Cincinnati at the Children’s Hospital.

We have a long road ahead of us and any and all prayers are appreciated for our sweet boy. We aren’t sure why God chose this path for us and it has been a very tough pill to swallow, but we know everything is according to his plan.