
Diagnosed with Hodgkins Lymphoma
Donation protected
A little about me first for those of you who don't know me personally. I was born and raised in Germany, moved to the US when I was a kid then to Sweden around 10 years ago. When I'm not on sick leave I work on the NICU. I've worked with child hospice, emergency gynecology, post-op, stemcell transplants and now the NICU (neonatal intensive care unit, where they have the premature babies). I LOVE my job and I miss it terribly, I can't even fathum that I'm now on 100% sick leave until NEXT YEAR! I can't even imagine not working for another 6 months! Im going to go insane! SO that's just a tiny bit about who I am.
So, a little about what happened.
As you all now know it turns out I have Hodgkins lymphoma. I've been waiting for MONTHS to finally have gotten my diagnosis. This whole journey started in January 2023 when I went in to the hospital for breathing problems and I was told it was most likely something called Sarcoidosis and that I'd be fine, and that it's nothing to worry about. Well that was a bust and now I'm going to have to rush start treatment. I got my official diagnosis yesterday, I went to the dentist today, tomorrow I'll have a PICC line installed and Monday it's "go time" with my first dose of chemotherapy. I'll be going through 4 rounds of chemotherapy followed up by radiation and immunotherapy. Each chemo session will be administrated via IV which takes around 2 hours each time. Ill get a dose on Mondays every other weeks so 12 weeks total of chemotherapy if all goes well, then radiation.
I have to admit I am a bit terrified. As I've worked with stemcell transplants I've seen some of the effects of chemotherapy and that scares me, but in a way, it's oddly comforting to know what might be coming if that makes any sense? I'm officially on sick leave until December 31, 2023, so I'm really worried about being able to pay the bills. I'm sad not being able to work, about losing my hair, having had to cancle my summer travel plans, not being able to go to the gym, I'm uncomfortable being weak and needing to ask for help, about having my life change forever. As someone who's used to taking care of others it's not easy to be the one laying in the bed and having to let others help me. It doesn't feel like reality. It's like the world got turned upside down, I waited months and now all of a sudden it's bam, bam, bam bam. I have to buy a ton of supplies, a lot of the products I have I won't be able to use while under treatment like the kind of body wash I use, shampoo, facial cream, sunscreen, laundry detergent, bedsheets, loose fitting clothes, heating and cooling blankets, "home gym" equipment since staying active is SO important while going through these types of treatment and my doctors have said the gym is off limits. I'd also love to have a wig! After many wig consultations I found THE perfect wig which costs around $1,500 I tried synthetic at one of my wig consultations and it gave me hives, my skin has become SUPER sensitive, I can't even use normal bandages anymore, has to be special ones for very sensitive/fragile skin
I know it's superficial but it's just something that would give me comfort and make me feel somewhat normal to not always have the constant reminder of being sick and have others stare, it would also be so nice to do some modeling again
So, here I am painfully embarrassingly asking if anyone could help contribute. Any little bit helps. I know times are tough and I get it, if you can't help but even just sharing would be greatly appreciated!!!
Organizer
Nicole Liebegott
Organizer
Västerhaninge, AB, Sweden, AB