Taylor’s story
Donation protected
My name is Taylor, I’m 23 years old and I have Gastroparesis, and Postural orthostatic tachycardia syndrome. Gastroparesis is a condition where your stomach is paralyzed and loses its function to absorb nutrients, so anytime I eat or drink something my body rejects it, I get nauseated, bloated, acid reflux, and sometimes pain, my symptoms got so bad I dropped to 77 pounds and landed myself in the emergency room for severe malnutrition, my blood levels were very poor, which resulted in a feeding tube I got 3 weeks ago, I spent 2 weeks in the ER at MUSC in Charleston due to complications, and finally ended up coming home to Tennessee this past Sunday.
This morning I woke up to my machine saying it was blocked and not flowing, so I tried to flush my tube with water and realized there was a hole in it, I can no longer use it, so I am on the way back to see my specialist in Charleston (a 6.5 hour drive) to try and get this resolved. We have traveled back and forth a lot because of these issues and just trying to find a solution so I can get the nutrients I need. It has been very hard because we have been unable to work due to being in the hospital so much, anything counts and everything helps, thanks so much.
This morning I woke up to my machine saying it was blocked and not flowing, so I tried to flush my tube with water and realized there was a hole in it, I can no longer use it, so I am on the way back to see my specialist in Charleston (a 6.5 hour drive) to try and get this resolved. We have traveled back and forth a lot because of these issues and just trying to find a solution so I can get the nutrients I need. It has been very hard because we have been unable to work due to being in the hospital so much, anything counts and everything helps, thanks so much.
Organizer
Taylor Cable
Organizer
Maryville, TN