Hi I have put together this Go fund me page to help support Maddie-Rose's family during this devastating time.

Maddie has been in Bristol children's hospital since the end of July following essential heart surgery. Maddie-Rose faced some difficulties in her recovery as they struggled to get her off the ventilator. Last week Maddie was successfully removed. Her heart had recovered well and she was maintaining O2 Sats in the high 90's. After weeks of her family sitting by her bedside they could finally see the light at the end of the tunnel.

This week the hospital started plans to reduce Maddies pain medication which had been essential in her recovery from major surgery. This was part of the discharge plan.

On Wednesday Maddie-Rose temperature spiked and she became delirious what happened next was the unthinkable.

Maddie-Rose Passed away in the early hours of Thursday morning. They do not know why, The hospital are unable to issue a death certificate so an investigation needs to take place to determine why this happened.

The family now have a heart breaking wait for answers.

I Know that their finances are already strained due to their extended stay at Bristol.

Now they need to plan their final farewell to a beautiful little girl.

It's a heart breaking situation the only thing we can do is help them with the financial burden of a funeral, while the family try to process what has happened.

Maddie faced many challenges in her life. She was a brave little girl who loved trains and Pokemon.

Shine bright little one ⭐️⭐️

The family currently remain in Bristol until they can Bring Maddie-Rose home to cornwall.

Any money raised will be used for the family to use as needed.

I know many of you have already shown your support for the family. If you are able to help it would be greatly appreciated. I have set up this separate go fund due to the change in circumstances.