Jake was diagnosed at age four through genetic testing. He inherited this disease from his dad, who sadly passed away from complications of the disease in 2014. This is classified as a rare disease.
Jake started having colonoscopies and endoscopies at age 10, and has undergone two surgeries. The first was to remove his entire colon. Two months later he developed an intestinal blockage which resulted in a second emergency surgery. He ended up with a temporary ostomy bag for six months. This has been a very difficult and scary adjustment for a teenage boy to deal with, but he has handled it amazingly well and we are all very proud of him and his courage!!
Surgery number three, which will be the biggest and most complicated so far, will be the one I mentioned beforehand, on December 11th to remove the ostomy bag and reconnect his intestines. We are all praying for a successful outcome and speedy recovery. This young man has been through so much. He's a fighter and a hero!!
My sister Bethy is unable to work during this time as she is his only caregiver. She has been paying for all Jacob's medical supplies such as ostomy bags, and additional accessories, as well as travel expenses since March. This of course will continue for the unforseeable future.
All donations will be used strictly for his mom to travel to the hospital, however long that may be, medical supplies and medical bills.
Also asking for prayers as Jacob embarks on this difficult but necessary life saving surgical procedure.
- Charlie Pinkard
- Elisha Nelson
Organizer and beneficiary
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