please share and post to fb thx

My name is Reid Dorn and I am Alec’s father. Just found life seems to get harder everyday thank you for shareing or donating my pride needs to be set aside i caint keep this going without your help thank you again reid and the boys .. About five years ago Alec Charles Dorn was diagnosed with Hunters type 2, attenuated.  Only about 1 in 25,000 kids make it to birth with this disease. Alec is now 10 years old. He can still walk and talk, but has a lot of mobility problems. His heart, liver, and kidneys are all in bad shape but he is still alive and functioning. Most children with this disease pass away in their sleep, so my heart is pounding every single morning when it is time to wake him up for school. Alec receives infusions of Elaprase, which is an enzyme replacement therapy. It is meant to clean his cells out so they don’t die after being formed. The cells that do die, even with treatment, turn to calcium and attach to every part of his body. Because cells make up your entire body, you can imagine the damage that is being done every day, week, and year that passes. Out of over 1500 appointments we have now been to together, I am thankful that I have only had to miss 2. Each appointment is a 200 mile drive round trip. When I need to see one of his specialists in San Francisco, it is closer to 400 miles round trip. I work multiple jobs to help support my family, and I receive some financial assistance through various organizations. However, the gas, food, and money spent on each trip, as well as the constant wear and tear on my vehicle has created quite a financial burden and my family and I. His condition causes his feet to be as wide as they are long, so his custom made shoes are $1200 alone. I want more than anything else to spend the next few years with my sons, just letting them do some normal things that kids do… Like going camping, going to the movies more… Maybe drive to the Grand Canyon so they can experience the true beauty in this world. Not hours upon hours of driving to the hospital, or sitting in waiting rooms.  Thank you all who have taken any time out of your day to read this, share this, or help donate. I promise that any money donated will be spent on caring for my son, and bettering his life while he still has time left.  It is time to suck up my pride and see how this goes. I love you all. Thank you again and God Bless.                                                                                                                                                 Reid, Alec, and Kody Dorn. P.S.        I hope he’s the first case of Hunter’s type 2 to live a long and and full life. My money’s on him!

Donations ()

  • Daniel Lassotta 
    • $100 
    • 27 mos
  • Anonymous 
    • $50 
    • 27 mos
  • Tony Decaneva 
    • $25 
    • 27 mos
  • Anonymous 
    • $500 
    • 28 mos
  • Austin Cain 
    • $40 
    • 28 mos
See all

Organizer

Reid Dorn 
Organizer
Chico, CA
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