Wingen Family - Aimee, Bryan and baby Waylynn

A note from the family:

”Our daughter Waylynn Betty Wingen was born on December 4th 2019 with a rare genetic disorder called Zellweger Syndrome. The disorder affects her brain, nervous system, and most of the major organs. Waylynn spent 18 days in the NICU, came home for Christmas and then was readmitted 5 days later due to seizures. We are back home again and are managing her seizures and other symptoms with Home Health and outpatient care. She has a great team of nurses and doctors around her. There is currently no cure for Zellweger and our hearts are broken at the fact that Waylynn’s time with us will be much shorter than we ever expected. This is a worst nightmare for any parent, especially first time parents, but we are trying to keep our heads high and create a positive and loving environment for Waylynn. We want her to feel as comfortable as possible and are committed to giving her the best life she can have. This GoFundMe was set up to help offset the cost of medical bills, travel expenses to all the hospitals, grocery money, and really anything to support our family right now as we figure this all out. We really appreciate all the love and when we feel loved, Waylynn feels it too. So thank you all so much.”