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Little Hero

£25,078 of £100,000 goal

Raised by 881 people in 4 months
Created March 26, 2019
Our beautiful little boy Will was an adventurous and cheeky 6 year old, full of beans and with a real love for life. Sadly, we recently lost him following a 9 month battle with a particularly aggressive type of Medulloblastoma, a childhood Brain Tumour. Medulloblastoma is the most common high grade childhood tumour, accounting for 15-20% of all childhood brain tumours. Whilst being caught early, Will's tumour was identified as having high risk and fast growing genetics (Group 3) and had already spread through his cerebrospinal fluid coating parts of both the brain and spinal cord.Will's surgery was a great success, he fully physically recovered (playing football on the wards!) and had access to the established 'Gold Standard' Radiotherapy and Chemotherapy treatment. Despite all of this, Will relapsed during the end of his treatment and quickly succumbed to its aggressive progression within a month of the relapse. With hindsight and in light of very recent advances in genetic understanding, it is clear the 'Gold Standard' treatment was unlikely to be successful in curing a Group 3 variety that had already spread. The 'Gold Standard' is an under researched, 30 year protocol that has not developed significantly over that time. New advances in genetics are confirming its ineffectiveness in fighting the most aggressive and devastating types of Medulloblastoma such as WIll's. We are raising money to:-
Fund research into more effective primary treatments for the most aggressive varieties- Support other families fighting this savage disease.
Push for change in primary cancer care methods, targeting specific genetic varieties and refocus towards bespoke treatment and innovation rather than protocol and dogma. We fought really hard to save Will and whilst we lost him, perhaps we can be a force for good and help other families to save their children.
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Great work team...
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Training miles done two days before our departure last minute packing and bike maintenance big thanks to James at Cycling Position St Nicholas Street Bristol for fitting my bike and all the great advice.
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Great work by Nick Walrond! Just cycled the hight if Everest for little hero, amazing!
https://www.facebook.com/100009209558114/posts/2315171998799763?s=100034226933880&sfns=mo
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Hi Everyone, this is a heartfelt fundraising request,

A colleague of mine tragically lost his cheeky little 6 year old son Will, following a 9 month battle with an aggressive type of childhood brain tumour called Medulloblastoma.

The “Little Hero” charity is being launched with a dozen events in and around Bristol this year. It aims to raise more than £100K and has already made a significant start in the local community, where Will’s loss has been felt deeply.

Will was such a massive personality with so much raw charisma, charm and empathy. Throughout his short life he always had the ability to connect with people and love life, and that was true to the very end. He was a normal boy facing a huge challenge, and he faced it down at every step, head on. A genuine Little Hero.

I am supporting Little Hero to help other families facing the disease and to raise funds to improve treatments for childhood brain tumours. Despite retiring from club running I am making a return to run at Bristol 10K and Half Marathon. Please note I've never done a Half Marathon before but I'm intending on running it in sub 1hr20mins!

Please sponsor me: https://lnkd.in/gdwAw2i
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£25,078 of £100,000 goal

Raised by 881 people in 4 months
Created March 26, 2019
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