Little Hero

Our beautiful little boy Will was an adventurous and cheeky 6 year old, full of beans and with a real love for life. Sadly, we recently lost him following a 9 month battle with a particularly aggressive type of Medulloblastoma, a childhood Brain Tumour. Medulloblastoma is the most common high grade childhood tumour, accounting for 15-20% of all childhood brain tumours. Whilst being caught early, Will's tumour was identified as having high risk and fast growing genetics (Group 3) and had already spread through his cerebrospinal fluid coating parts of both the brain and spinal cord.Will's surgery was a great success, he fully physically recovered (playing football on the wards!) and had access to the established 'Gold Standard' Radiotherapy and Chemotherapy treatment. Despite all of this, Will relapsed during the end of his treatment and quickly succumbed to its aggressive progression within a month of the relapse. With hindsight and in light of very recent advances in genetic understanding, it is clear the 'Gold Standard' treatment was unlikely to be successful in curing a Group 3 variety that had already spread. The 'Gold Standard' is an under researched, 30 year protocol that has not developed significantly over that time. New advances in genetics are confirming its ineffectiveness in fighting the most aggressive and devastating types of Medulloblastoma such as WIll's. We are raising money to:-
Fund research into more effective primary treatments for the most aggressive varieties- Support other families fighting this savage disease.
Push for change in primary cancer care methods, targeting specific genetic varieties and refocus towards bespoke treatment and innovation rather than protocol and dogma. We fought really hard to save Will and whilst we lost him, perhaps we can be a force for good and help other families to save their children.