WillowStrong Conquer Chiari

Willow has been diagnosed with chiari malformation type 1. We are having to make several trips to and from Cincinnati and eventually stay there for them to do surgery to help decompress it. The surgery entails they will remove some of the duramatter (brain tonsils) and maybe a bit more and shave off some of her neck bone to alleviate her symptoms.  We have been told there is no cure for chiari as of now, however this will help significantly. My baby screams and cries mostly at night nearly every night when holding her head in pain. We are roughly 3 and a half hours away from Cincinnati and have other children to consider in this endeavor as well. We've been told we are looking at a 2 week stay minimum, which means my husband will not get paid for missing work and we will require a hotel room also. The Ronald McDonald house is not accepting many people right now due to covid 19. I've been advised this is our best option as of now to raise the funds we will need for so many things. It is quite expensive for a room in Cincinnati for 14 days maybe plus. Also food and gas. Willow had an appointment this morning with her pediatrician who recommends we follow through with this scary surgery. She also has an ENT appointment April 26th,  a neurologist appointment on May 3rd., to get all our ducks in a row before surgery. We expect the surgery to be in the next few months at the latest.  Also she will have many scans after the surgery which means more trips to Cincinnati. I believe she is in the best hands possible with Dr. Francisco Mangano. Chiari Malformation is a lifelong battle and will require lots of therapy afterward and hopefully only yearly scans after the first year. Any help you can give us at all is greatly appreciated. And please pray this surgery gives our baby girl some relief. Thank you all so much