At the beginning of this year, our beautiful 2 year old little boy, Wilf, was diagnosed with Duchenne Muscular Dystrophy (DMD), which is a rare, progressive muscle-wasting condition. Over time, this will rob him of the ability to run, walk, lift his arms, and eventually even breathe on his own.

Nothing can prepare you for hearing those words. Our world was turned upside down, and we’re still trying to process what this means for Wilf and for our family. But, like any parents, we’ll do everything we possibly can to give our little boy the best chance at a happy, healthy future.

Because DMD is progressive, time is incredibly important. While there is currently no cure, there are emerging treatments that offer hope. Some are being trialled, so there is a possibility of him being included but spaces are limited and there are no guarantees.

The most promising treatment is gene therapy, which is already approved in a few counties including the US and has shown great potential for children with DMD. Unfortunately, the one dose treatment comes at an overwhelming cost of £3.2 million dollars excluding hospital fees.

Asking for help is something we never imagined we’d have to do, and it does not come easily. But we never want to look back and wonder if there was more we could have done for Wilf. If there’s a chance to change his future, we have to try.

If you’re able to support us, no matter how big or small the donation, we will be forever grateful. And if donating is not possible, simply sharing our story would mean the world to us and help reach more people.

Amy, Steve & Wilf

Please note if for any reason the funds can't go towards gene therapy, it will go towards Wilf’s future care and/or treatment. There are other countries starting to offer gene therapy, which we are trying to get quotes on, so once we have more info will reduce the goal amount if possible.