White Sutton Syndrome Foundation

There is no hope without research.
There is no research without funding.
There is no funding without awareness.

White Sutton Syndrome, also known as the POGZ mutation, is a rare neurodevelopmental disorder that was first recognized in 2016. It is our goal to bring more awareness, to fund more research and to start a nonprofit that will greatly benefit those with this syndrome. In order to start The White Sutton Syndrome Nonprofit Foundation, we need donations to help offset attorney and filing fees. This organization’s first mission is to bring families together and raise money for much-needed research.

"Hope means so much more since sometimes that is all you have"- Nicole Vallier

Please join us as we launch towards our goal of a brighter tomorrow for these special people and those that love them.


  • Amy Wood 
    • $100 
    • 25 mos
  • Sharon Meile  
    • $50 
    • 26 mos
  • Ryan Price 
    • $430 
    • 26 mos
  • Heather Keiler-Green 
    • $20 
    • 26 mos
  • Angelo Banks 
    • $30 
    • 26 mos
See all

Organizer and beneficiary

White Sutton Families 
Bethany, OK
Amanda Couch 
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