Our son Colton is five years old and has a rare genetic neurological disorder called Pontocerebellar hypoplasia. It's a horrible disorder that is considered terminal, but we aren't letting that define our son. Colton is paving his own path and redefining this disorder by doing lots of things he "isn't supposed to do". He doesn't walk or talk, is g-tube dependent, has cortical visual impairment, brain issues, seizures, low tone, dystonia, a swallow disorder and other challenges. He can however, sit, crawl, pull to stand, grasp and transfer objects, laugh and purposefully make choices when desired. His smile is contagious, and his determination will inspire anyone who meets him! We are so thankful that Colton has been healthy over this last year. He is thriving, and we are hopeful that we will have many more years with our sweet boy.
We are fundraising in order to purchase an accessible van to transport Colton to and from therapies and appointments. Our SUV isn’t large enough to transport Colton’s wheelchair or gait trainer, and it’s getting more and more difficult to get him in and out of his car seat. We are limited on what we can do as a family, as carrying Colton everywhere is exhausting at this point. Your support would mean so much to our family. Any and all donations are welcome and appreciated!