Wheelchair accessible van for Karter

Hello everyone, my name is Alexis, and I am Karter's mama. I suppose I will start from the beginning but will try my best to keep things short and to the point. I was pretty young when I got pregnant and had Karter right before I turned 18. Needless to say, I had to grow up really fast. I believe Karter was my miracle as well as proving to be my miracle every single day. I was full term, he was completely healthy with no complications. Fast forward to 6 months old, and things changed drastically out of nowhere. My baby boy started having severe seizures. I knew right away the road we were about to go down. Unfortunately, epilepsy isn’t rare in my family. I had it, and praise God, I have been seizure-free for a long time. My twin has them, my grandma and great-grandma, etc. As I wasn’t super surprised, I was more or less just so angry and sad and honestly blamed myself for Karter going through these horrible seizures. I still mentally struggle with the fact that my baby boy is the way he is when he is the sweetest baby boy. I ended up taking him to the hospital, and things got way worse before they got better. He was having close to 50 seizures a day; they just wouldn’t stop. We tried every single antiepileptic medication, and nothing was working. Because of that, we needed to quickly give his brain a chance to rest, so we put him in a medically induced coma, where they then put in a G-tube to eat that way. He was in the hospital for 3 long months. I truly thought we were gonna lose him. We were running out of options whenever our last hope was for us to try the keto diet theory. Things ended up getting better from there. Fast forward to more present time, his diet completely changed everything drastically for the better. His seizures have been under control, with a few flare-ups but nothing too terrible, praise God. He is now 4, but because of all the brain injury from the countless seizures, he is extremely delayed in most and all categories. He is not walking, sitting up, or talking yet. He still is currently eating his nutrition through his g tube, slowly starting to eat by mouth again. He is very chatty with the babbling and will get places by crawling and rolling over, so slowly getting there! He is growing like a weed, 35 pounds, and just keeps getting taller. Unfortunately, I do not know and will not know if and when he will walk, but he is in constant therapy, and all I can do is hope and pray God will help heal him and get him there. ❤️ He truly is my whole entire world. He and myself, as well as my family, are continuing to work with St. Louis Children’s Hospital neurology team to try and figure out what explains my baby boy's rare condition. We are about to join a new genetic testing to hopefully find answers to why. As he continues to grow and get bigger, I will have to accommodate a lot in my life to make sure he gets everything he need medically. I am going to have to get him more equipment, a wheelchair more than anything. My goal for this gofundme is for me to be able to get a wheel chair accessible van to fit all of my baby boys growing list of needed equipment. Right now, with me having his play yard to sleep in when we go places for naps, his high chair for feeds, and his stroller, there is absolutely no room in my current vehicle. I have to put all the seats down, and my partner can’t drive without being crushed against the steering wheel. It’s just really stressful and hard to go anywhere, honestly. I really am grateful to be able to share his story, and I hope we can do this. Thank you, everyone. ❤️