Oscars Cancer Journey

UPDATE 15/Dec/2023

I just want to thank again every single person who has donated and helped our family out. We have made some fantastic memories over the past few weeks, From Halloween Trails to Light Shows and Santa experiences, it has Truely been a magical season.

Oscar had his hickman Line removed last week and this has opened so many more doors to Normality. He can have proper baths, go swimming, play football even jump on the trampoline, all these things were taken away from him this year and he is delighted to have them back.

The line is a huge infection risk (and the likely cause of his Staph Auerus Sepsis Infection earlier this year) so for it to no longer be there reduces his chances of infection greatly. There is a long way to go treatment wise, 5/5/2026 is when treatment finishes but He battles on with his big smile. Hes in school everyday and he has even had a haircut!

He will be 8 next week and he is looking forward to Christmas. There was a time this year I didn't even know if he would make another Christmas, so I am so truly thankful he is here and he is well and we plan to finish 2023 together as a family, because presence is what truly matters, not just at Christmas but all year round too ❤️

UPDATE: 31/8/2023

Thank you so much to everyone who has donated and shared!

Oscar was able to go back to school today. Obviously this is a great risk as he is prone to infections but its the 1st step in getting his life back to normal. There was a lot of tears from me today but so greatful that he has come this far.

Hey everyone, so after a lot of consideration and lots of requests we have decided to set up a GFM for Oscar.

Oscar was Diagnosed with Accute Lymphoblastic Leukemia in March of this year, aged 7. He went on to develop Sepsis caused by a bacteria called Staph Aureus, but made a full recovery from that.

The past 6 months have been spent mainly in Crumlin Hospital, separating our family for long periods of time, when we would never be apart before this.

Oscar has received 100s of doses of chemo, lost his hair twice and is very reliant on his wheelchair because of pain and weakness caused by his medication. He has developed Peripheral Neuropathy from Chemotherapy and walks on his toes because of it which puts strain on his already weak legs, so he can only tolerate a small amount of walking before he gets too tired to go further. He has had countless antibiotics, a platelet transfusion and 3 blood transfusions. The whole summer Oscar went through the intense part of his treatment and as a result spent most of it in hospital and when out of hospital he was isolated due to having no immune system at all. (Absolute Neutrophil Count of 0)

Our other 3 Kids have also been greatly impacted by everything and didn't get to do a lot this summer, or play out with friends for risk of bringing anything home to Oscar. Not a single day passes where Oscar dosnt smile and laugh, even on his worst days you can find him using his wheelchair as a go cart down the halls of the hospital. He takes it all in his stride and is an inspiration to us all.

Oscar is due to start Maintenance part of his Treatment and will recieve Chemo every day until 5th May 2026. He will get one monthly Chemo and every 12 weeks will receive a Lumbar Puncture where they inject chemo into his spinal and brain fluid.

So while he still has a long way to go, this part of his treatment he should be able to live a more 'normal life' and just have a lower immune system instead if none at all. Any temperatures still require hospital evaluation and maybe even hospital stays and transfusions. We are starting this GFM to raise money so we can make memories with Oscar and his siblings, so everything isn't just hospital appointments and sickness and also to help us out financially as a family.

Please don't feel under any obligation but we appreciate everything that is donated.

Thanks a million. #Fightlikeachild