Weston’s Fight Wolmans Disease

Hi Everyone

I am setting up this fundraising page to help my little sister and her beautiful family.

Tara and Will's youngest child Weston, was diagnosed with life threatening Wolmans Disease and Haemophagocytic Lymphohistiocytosis in October 2021 at just 12 weeks old. This has led to Weston being the first child in Australia to survive a Bone Marrow Transplant for this disease.

All was going well until last month when they received the devastating news that the BMT was not successful as they had hoped.

This means that Tara and Will are back down at Westmead Childrens Hospital with Weston, about to face another 100-plus days away from home to try again with another transplant.

As well as being a terrifying time, facing intense chemotherapy, painful side effects and emergency scenarios that can land them in intensive care, they will be away from their older two children Poppy and Hunter for months, including Christmas this year.

Tara and Will have been unable to work for over 12 months now and you couldn't imagine the expense attached to travel, accommodation, and medical expenses, as well as basic maintenance of their life at home, including their mortgage.

I know many of you gave so generously to them last year, and we are so grateful to you, but they still need your help. They imagined being back on their feet by now, but are still facing a stressful financial future. If you can give any small amount to make their lives just that little bit easier, please know it would be so appreciated.

You can follow Westons Journey on Facebook https://www.facebook.com/WolmansDisease

He is the most beautiful little boy and all our family wants is to bring him home at the end of this nightmare.

If you are unable to donate, please consider sharing this fundraiser for them

Thank you so much

Chantelle xxx