Cri du Chat Conference for Gunner
Donation protected
Hello Friends,
Most of you know our son Gunner has a very rare genetic disorder called Cri du Chat, also known as 5p Minus. This means he has a deletion in the 5th chromosome. He does not develop like a typical child. Gunner is very strong and goes to a special needs school where he receives his PT, OT, and Speech Therapy. On top of his therapeutic school, he gets Horse therapy 2x/week, extra Speech and extra OT every week! He is resilient and grows each and every day :)
We are members of the 5p Minus Society which supports families who have children with Cri du Chat. Every year they have a conference where families can gather, share their experiences, challenges and milestones. We support and build each other up, refueling for the year ahead. It is a safe place for us to go and let our guard down being surrounded by so much love and support. They have a panel of doctors and breakout sessions for the parents to learn as much as possible about how to handle the challenges we face day in and day out.
This year we were not able to attend the conference due to the financial burden, and it was heartbreaking. We want to be able to learn as much as we can to help our son thrive. We are asking for donations to help fund our journey to the conference next year. It will be held in Costa Mesa, CA in July 2016. We would like to reach our goal of $4,000 to cover flight costs for the 4 of us, hotel stay, registration, and basic traveling expenses.
We will donate a portion of the proceeds directly to the 5p minus Society to help the cause.
We are so grateful to have such a wonderful support system of friends and family and hope you consider a donation, in ANY amount, to help us get to Cali and educate ourselves for our little guy :)
Love and hugs,
Jen & Frank
Most of you know our son Gunner has a very rare genetic disorder called Cri du Chat, also known as 5p Minus. This means he has a deletion in the 5th chromosome. He does not develop like a typical child. Gunner is very strong and goes to a special needs school where he receives his PT, OT, and Speech Therapy. On top of his therapeutic school, he gets Horse therapy 2x/week, extra Speech and extra OT every week! He is resilient and grows each and every day :)
We are members of the 5p Minus Society which supports families who have children with Cri du Chat. Every year they have a conference where families can gather, share their experiences, challenges and milestones. We support and build each other up, refueling for the year ahead. It is a safe place for us to go and let our guard down being surrounded by so much love and support. They have a panel of doctors and breakout sessions for the parents to learn as much as possible about how to handle the challenges we face day in and day out.
This year we were not able to attend the conference due to the financial burden, and it was heartbreaking. We want to be able to learn as much as we can to help our son thrive. We are asking for donations to help fund our journey to the conference next year. It will be held in Costa Mesa, CA in July 2016. We would like to reach our goal of $4,000 to cover flight costs for the 4 of us, hotel stay, registration, and basic traveling expenses.
We will donate a portion of the proceeds directly to the 5p minus Society to help the cause.
We are so grateful to have such a wonderful support system of friends and family and hope you consider a donation, in ANY amount, to help us get to Cali and educate ourselves for our little guy :)
Love and hugs,
Jen & Frank
Organizer
Jennifer Walker Pasquale
Organizer
St. Augustine, FL