Moriah the Brave Beyond MD Anderson

My name is Rachel Moore and I am the mother of a 16 year old with Fibrolemellar Hepatacellular Carcinoma.
Her name is Moriah the Brave.
This is a very rare form of liver cancer that effects mostly children and teens. To explain in simple terms how rare it is Moriah is One of two patients to ever be treated at Children's Hospital in Littlerock. She was diagnosed in 2011 and shortly after underwent a liver resection and gall bladder removal at the age of 12. She remained cancer free until Nov. 2014 when it returned in a portal node. Which was removed and biopsied. It returned again with a vengenance in November of this past year when a thought to be node was found and monitored until February of this year when I was made aware of it and asked the Surgeon to biopsy it. It was cancer and during that procedure even more cancer was found all over her pelvis. Unknown to me was that during the past 4 years of scans every 3/4 months no scans were being performed on her pelvic region. Moriah just 14 days ago underwent her fourth surgery to remove tumors from her abdomen, bladder, uterus, ovaries (losing one),  vaginal wall, pelvic wall, perirectal and rectal areas. Leaving behind some cancer that could not be removed in her cervical and uterian lining. Also found upon scanning the day before this surgery were two liver tumors which doctors and calling unresectible or unoperable. And after my persistance and more scans were done of her head, neck and chest a tumor was found in her sternum as well. Again this cancer is extrememly rare and most drs have never heard of it much less treated it. However, at MD ANDERSON in Houston Texas there is a Dr. willing to see her who has treated over 114 patients with this disease. However due to them not taking arkansas medicaid they require a $23,000 upfront payment. Her doctors at Childrens have worked hard to care for Moriah however we would like the opinion of drs and surgeons who are treating currently and have treated recently this cancer. Any help financially would be appreciated. And all prayers are coveted.
6-24-18 edited
since the original go fund me purpose began Moriah has had
11 months of chemo and is about to begin 3/5 months more, she has had 7more surgeries and is in 2/months going to have more, she has been multiple times to MD and even lived in Houston for two and half months to have a liver resection which was not successful.
she has been to NIH in Maryland, she now receives treatment mostly in Heber Springs and Littlerock through  Carti.
Any donations now go towards copays not covered, travel expenses, motel expenses and any expenses associated with her care or treatment!
update 4-4-19
moriah has undergone chemo almost constantly since September of 17, she graduated from Highschool and started college since the last update, has had yet another surgery and started immune therapy as well!
She has stopped attending college to pursue Dental Tech Certification!
She has developed toxicity to two of the most widely used cocktails of chemo for this chemo resistant cancer! We now have the opportunity to have surgery performed to remove the eleven tumors now ravaging her liver, abdomen and pelvis! However both hospitals currently do not accept her Medicaid! One is New York Presbyterian and one is Rush University Medical Center!
we are seeking help with air fare that is not covered by Mercy Medical Angels and, help with lodging and meals, as well as dr visit fees! The recovery time for a successful surgery of this magnitude will be 6weeks to months!
prayers, support, words of encouragement are all necessary for her physical and mental and spiritual well being!
thank you to all who have given and prayed and supported us through this battle!
We are braver and stronger together!

Donations

  • Billy Ottinger 
    • $10 
    • 5 mos
  • Tanya Swartwood  
    • $50 
    • 10 mos
  • Anonymous 
    • $25 
    • 10 mos
  • Dale Donnell 
    • $750 
    • 10 mos
  • Valerie Courville 
    • $15 
    • 14 mos
See all

Organizer

Rachel Holloway Moore 
Organizer
Heber Springs, AR
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