- C
- P
- M
As most of you know Sylis is 3 yrs old now. He suffered a devasting brain injury at birth due to lack of oxygen and blood loss.
Sylis has severe Spastic Quadraplegic Cerebral Palsy. He must get all his feedings by G-Tube and he has many very severe muscle spasms daily.
He also has his own nurse 40 hrs a week, who he adores.What a huge help and frankly a life and job saver for him and us. Despite it all he smiles and loves to be with those he loves.
Many people have asked along the way what he needs. Up till now we have been able to provide between family and insurance for those. Currently our focus is to help him with his motor skills and especially his vision. He needs practice practice practice many times daily. The thing we would like help with most at this time is an IPAD especially set up for him with a special stand and case and lots of apps to help him work hard.
He is such a tough little guy and a hard worker. We are finding we have run out of simpler ways to work at and keeping his interest is Huge!!!
Thank you for any help you can give to him it is all so very appreciated.
Sylis has severe Spastic Quadraplegic Cerebral Palsy. He must get all his feedings by G-Tube and he has many very severe muscle spasms daily.
He also has his own nurse 40 hrs a week, who he adores.What a huge help and frankly a life and job saver for him and us. Despite it all he smiles and loves to be with those he loves.
Many people have asked along the way what he needs. Up till now we have been able to provide between family and insurance for those. Currently our focus is to help him with his motor skills and especially his vision. He needs practice practice practice many times daily. The thing we would like help with most at this time is an IPAD especially set up for him with a special stand and case and lots of apps to help him work hard.
He is such a tough little guy and a hard worker. We are finding we have run out of simpler ways to work at and keeping his interest is Huge!!!
Thank you for any help you can give to him it is all so very appreciated.

