George is an 11 year old boy from Sussex living with an ultra rare genetic condition called WAGR syndrome.

In November we his family are ‘walking for WAGR’ to raise much needed funds for the international WAGR syndrome association, a very small non profit charity

who support families, raise awareness and fund research in to this 1 in 1 million rare disease. There are only 500 known cases in the world.

George is registered blind since he was born with no iris in his eyes, he’s also heavily autistic with sensory processing issues and is non verbal so has to walk with an adult at all times. Holding my hand we will be walking in the month of November to reach our target of 10 miles.

No matter how small, any donation is gratefully received and will help make a difference. Thank you so much for standing with us and supporting this charity. ❤️