Max's Medical Fund
Donation protected
To friends, family and generous donors of Max:
Max was initially diagnosed with Aspergers around the age of 3 and with Neurofibromatosis Type 1 (NF-1) in 2004. Since 2004, he has also been diagnosed with acromegaly (gigantism), precocious puberty, optic tumors, multiple brain tumors, and scoliosis. He has done 4 different types of chemo, has had 10 surgeries for ports and shunts, and has been on chemo for more than 6 of the last 11 years of his life. He most recently stopped chemo in February of 2015 in preparation of spinal fusion surgery to correct his scoliosis curve.
On April 24, Max had his spinal surgery. Remarkably, he had very little pain from the surgery and was actually able to walk by day 3 and complete a round trip on a flight of stairs by day 5. On Friday, May 1, Max returned home.
Things seemed okay initially but by Friday, he was taken to Morristown's emergency room because his heart rate was elevated and his blood pressure was nearly undetectable. He was admitted to the PICU May 8 with profound blood loss, apparently from a terrible case of esophagitis.
During a two week stay at Morristown he ended up on a ventilator, received 7 units of blood, 2 units of fresh frozen plasma, and had two poles of IV drips, infusions, and other medicines before he was transferred by helicopter to Children's Hospital of Philadelphia (CHOP) on Friday, May 23.
At CHOP he has been in the PICU for more than 2 weeks and is expected to stay there for several more. Unfortunately, as of June 10th, they still do not know exactly what is wrong. He has had 4 different drains in his abdomen and too many CT scans, ultrasounds, blood tests, and other workups to count. While they have identified and been treating both a bacterial and a yeast infection in his abdomen, they believe that there is an additional mold infection in there as well. There is hope that a lab at the University of Washington will be able to gather more information from his latest cultures and give his doctors something to treat.
Even once he starts the final treatment, he is expected to be in the hospital for a few additional weeks because he will need rehab from being on a ventilator, and in bed, for the better part of a month.
We have set up this website to raise money to help Max’s family with the medical bills, travel expenses, etc. they are incurring as Max continues to fight. Our hope is to lessen this burden in any way possible.
Any donation is welcome and appreciated! If you are not in a position to donate please share this post with as many people as you can to spread the word to help Max and his family!!!
If you wish to read more about Max’s journey you can visit: www.caringbridge.org/visit/maxkimpland
Thank you for all of your support!
Max was initially diagnosed with Aspergers around the age of 3 and with Neurofibromatosis Type 1 (NF-1) in 2004. Since 2004, he has also been diagnosed with acromegaly (gigantism), precocious puberty, optic tumors, multiple brain tumors, and scoliosis. He has done 4 different types of chemo, has had 10 surgeries for ports and shunts, and has been on chemo for more than 6 of the last 11 years of his life. He most recently stopped chemo in February of 2015 in preparation of spinal fusion surgery to correct his scoliosis curve.
On April 24, Max had his spinal surgery. Remarkably, he had very little pain from the surgery and was actually able to walk by day 3 and complete a round trip on a flight of stairs by day 5. On Friday, May 1, Max returned home.
Things seemed okay initially but by Friday, he was taken to Morristown's emergency room because his heart rate was elevated and his blood pressure was nearly undetectable. He was admitted to the PICU May 8 with profound blood loss, apparently from a terrible case of esophagitis.
During a two week stay at Morristown he ended up on a ventilator, received 7 units of blood, 2 units of fresh frozen plasma, and had two poles of IV drips, infusions, and other medicines before he was transferred by helicopter to Children's Hospital of Philadelphia (CHOP) on Friday, May 23.
At CHOP he has been in the PICU for more than 2 weeks and is expected to stay there for several more. Unfortunately, as of June 10th, they still do not know exactly what is wrong. He has had 4 different drains in his abdomen and too many CT scans, ultrasounds, blood tests, and other workups to count. While they have identified and been treating both a bacterial and a yeast infection in his abdomen, they believe that there is an additional mold infection in there as well. There is hope that a lab at the University of Washington will be able to gather more information from his latest cultures and give his doctors something to treat.
Even once he starts the final treatment, he is expected to be in the hospital for a few additional weeks because he will need rehab from being on a ventilator, and in bed, for the better part of a month.
We have set up this website to raise money to help Max’s family with the medical bills, travel expenses, etc. they are incurring as Max continues to fight. Our hope is to lessen this burden in any way possible.
Any donation is welcome and appreciated! If you are not in a position to donate please share this post with as many people as you can to spread the word to help Max and his family!!!
If you wish to read more about Max’s journey you can visit: www.caringbridge.org/visit/maxkimpland
Thank you for all of your support!
Organizer and beneficiary
Amy Bauerle Rossi
Organizer
Succasunna, NJ
Robert Kimpland
Beneficiary