Malachi (age 7) who lives in Colville, WA was diagnosed with Hunter Syndrome the last week of November. Hunter Syndrome is a very rare genetic disease (only about 500 cases in the US) that does not have a cure and causes progressive organ damage, especially to the brain and heart and breathing problems. Symptoms fall on a spectrum and Malachi is more on the severe end of that so his life will be shortened significantly. There are a few treatments that may possibly prolong his life a few years. He will need to make weekly trips from Colville to Spokane and also trips to Seattle for appointments with other specialists. This will be a long and difficult road for his family. We are raising money for these trips, for a better vehicle for their family, and other needs that will arise as his care becomes more intense and difficult.
Co-organizers3
Laurie Jarmer
Organizer
Spokane, WA
Callie Barcellos
Beneficiary
Warren Barcellos
Co-organizer