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Knox Strong

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I never thought that life would take such a turn at 20 weeks pregnant. Bart and I were filled with joy that we would be having an healthy little boy. At 16 weeks we found out we were having little Knox and everything looked great. At 19 weeks I woke up with extreme pain in my right side. I was rushed to the ER to find out I had a severe kidney infection and had to be put on antibiotics and stay in the hospital for a week. Once being discharged we had an ultrasound. I will never forget that day. Our doctor told us that baby Knox had fluid around his brain and neck. They were worried that he had a severe genetic disorder and got us with a high risk doctor immediately. A couple of days after receiveing this news we found out that our very close college friend, Philip Lutzenkirchen had passed away. I was so confused on why so much was happening. That next day we had an appointment with the high risk doctor who told us that Knox had a heart condition and that she was positive that he a genetic disorder and was pretty certain it was Trisomy 18 which is fatal. We were crushed. I did an amino that day to get the final diagnosis on what were were dealing with. We attended our friends funeral not even knowing if our son would live to term. Heartbreaking. The amino came back and everything was normal. However, the doctors were not giving up. They pushed and pushed for more testing and thousands of dollars later everything came back normal. We were physically and emotionally drained. We turned to God and came to peace that he was in control and we had to follow the path. What doctors didn't know is that when they put all their effort in to finding what "genetic" disorder Knox supposedly had, I was suffering from preeclampsia. At 29 weeks I was finally diagnosed with gestational hypertension. At 30 weeks I went to the hospital with a migraine and blurry vision. I never was released. My preeclampsia got so bad so quick that both of our lives were at risk. On August 22 the decision was made that we had to get Knox out immediately. He was taken via c section and was rushed to the NICU. Knox was beautiful, was breathing and looked so healthy. He was diagnosed with Pulmonary Stenosis but doctors still to this day can not find out the "genetic disorder." Knox was in the NICU for 3 months and was airlifted to UAB for heart complications. He was released from UAB with a milk protein allergy and severe reflux but that was it! Other than that we thought life would be normal. However, we got pounded with bills. We don't qualify for ANYTHING because my husbands salary is above the limit and we have private insurance. That means everything is on us. After saving for a couple months we were able to come close to paying off the bills. However, two weeks ago Knox stopped breathing. We were rushed in an ambulance to children's where he received an emergency trach. He had 10 percent airway and it's a medical miracle that he is still alive. We are blessed that he is such a fighter. He stayed in the hospital for two weeks and once he is stable we will be going to UAB for airway reconstruction surgery. Once again we are fighting hard for Medicaid but it's not an easy process. At this point we are paying for hospital stays, and tons and tons of equipment. We have never thought much about money because we will do whatever it takes to keep Knox healthy. However, when the bills keep coming and Bart and I living off a single income we look to our loved ones and friends to help us in ANY WAY! Even a dollar would help us out. We hate to ask people for financial help but when it comes to our baby we will ask for anything. Knox is the strongest person I have ever been around and his future is so bright. I hope his story touches your heart because he is a special person. He has defeated he odds.
Morgan and Bart
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    Organiser

    Morgan Johns Eddins
    Organiser
    Mobile, AL

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