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U Srbiji su vec skupili 20000eur sa Budihuman.rs
Trenutno je potrebno manje novca.
Vukasin was born on July 13, 2020. in Prijepolje.
At the birth itself, there were complications due to the wrapping of the umbilical cord around the abdomen and neck, where Vukasin is left without oxygen. He was discharged from the hospital with a pronounced tremor of his arms and legs with the advice of a pediatrician to do an ultrasound of the head.
At the insistence of his parents due to a visible delay in development, Vukasin was sent to Belgrade for a detailed examination. Along with the examinations, he is going to rehabilitation in Sokobanjska.
At the age of one, the parents receive the final diagnosis and answers related to Vukasin's health condition. A mutation in the TSEN 54 gene was found in Vukasin, which caused Ponto cerebral hypoplasia of the brain type 2A.
It is a very rare congenital disease that affects only 300 people in the world. As a result, Vukasin has microcephaly, epilepsy, increased muscle tone and severe stasis in psychomotor development.
Vukasin is now 20 months old. He goes to physical therapy regularly. Progress is slow but there is. He still doesn't turn around, doesn't sit, doesn't crawl, but Vukasin is still a smiling and happy boy. He loves songs, sound toys and loves swimming.
Considering that the parents have already exhausted their funds in the treatment so far and that they have a long and uncertain fight ahead of them, they need financial help. That is why they turn to all humane people to help them in accordance with their abilities.
He needs funds for treatment in the country and abroad, medicines, supplements, diapers, diagnostics, laboratory analysis, BDA training, stem cell transplants, daily rehabilitation, physical exercises, occupational therapies, dolphin therapies, sensory therapies, speech therapy and special education treatments, orthopedic aids, supplements, as well as for travel expenses and accommodation.
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Organizer
Sasa Potkonjak
Organizer
Lake Zurich, IL