
Help Nicole fight Myositis
This is a great website if you wish to learn more
It is such a humbling and humiliating experience to swallow your pride and ask for help. I want nothing more than to be healthy enough to work and help my family financially. I was diagnosed with a very rare auto immune disease 1 yr ago this June. ( antisynthetase syndrome, dermatomyositis)most of you probably don't know how sick I am. I don't want this disease to define me. Most of my symptoms are chronic joint pain and severe muscle weakness and shortness of breath due to the lung involvement, but one of the hardest ones for me to deal with is the extreme fatigue and brain fog. I want to be able to keep up with my busy kids! I also have Graves' disease and type 1 diabetes that was diagnosed 2 yrs ago in May. I have an insulin pump to help me control my diabetes.
Unfortunately I am not able to work very much to help financially and I am using so much of our income to pay for meds. I have most of my medical care at Mayo in Rochester. Which is such an amazing place , and I am so grateful to be close enough to have access to its amazing doctors, unfortunately all the tests,treatments, meds,and visits add up quickly. My diabetes supplies are the ones that cost the most, even with good insurance. My husband, Ivan works very hard but we are having a harder and harder time keeping up. I know it is very stressful for him as well.
I know it's part of life but every time I pick up insulin or some other med I think of all the other things I'd love to be doing with my kids.
I am generally a very optimistic person and have a lot of faith in God that everything will turn out good In the end. I know it will. I appreciate so much all of you taking time to even read this. It was really hard for me to write it. I feel so lucky to have so much love and support already from so many.
If you are unable to give please take a minute to say a prayer for myself and my beautiful family. Thank you all so much and God bless
Love, Nicole