My name is Priya and I am only 7 years old! I am going to swim 50 lengths of the swimming pool (1250m) to raise money for a special charity on 29th August 25

My Nanny was my best friend and she sadly passed away recently as a result of VHL. VHL is a genetic condition that a person is born with and can be passed down through generations- my family are super lucky Nanny didnt pass it on and has stopped with her.

Von Hippel Lindau (VHL) disease patients battle a series of malignant and benign

tumours/cysts their whole lives.

The gene that is involved in VHL is also involved in other more common cancers, such as kidney

cancer and breast cancer. If researchers can to overcome the gene mutation for VHL, they

may be able to do the same for other cancers. Manifestations commonly occur on the retina,

brain and spinal cord, kidneys, pancreas, inner ears and adrenal glands (pheochromocytoma).