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A chance for Sarah

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Hi, my name is Aisling and me and my mum Catherine are asking local people to help my little Goddaughter Sarah, and mums Gran Niece. Our family are originally from Belgooly and it is where our relations are. Sarah is such a bright 6 year old girl that took her first steps in our home with her godparents, Aisling and Shane and has a lot of problems going on.
Over the past two years Sarah has been through so many tests which led to Sarah being initially diagnosed with Uveitis. In the end Sarah got diagnosed with a rare genetic cancerous disease called Wagner’s Syndrome which affects different parts of the body, in Sarah’s case it’s affecting her eyes. Once a month Sarah is on a low dose of Chemotherapy and an injection once a week of chemotherapy as well as medication daily to help prevent cancer developing, she is due an operation next month in Great Ormond Street Children’s Hospital London, hopefully to improve Sarah’s eyesight which is not guaranteed.
Sarah’s parents Patrick and Sarah Connery, daughter of Sean and Jane O’Leary have already gone through so much already with the passing of their son Joseph aged 4, five years ago to another rare genetic disease.
Due to Sarah’s condition their home needs to be upgraded to it make a safe environment for Sarah to live in. Lighting needs to be added throughout the house especially the stairs and their back garden needs shelter especially during the Summer as due to all the medication and infusions she cannot be in direct sunlight, as it affects her eyes and she is in high risk of sunstroke, she needs a safe place to play.
Sarah also has two amazing sisters Kacey and Khloe.
Because of what’s happening to our family we have decided to fundraise for her by starting this page.
Any donation would be greatly appreciated.

Thank you for taking the time to read this.

Fundraising team (2)

Aisling Murphy
County Cork
Catherine O’Brien Murphy
Team member

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