The news that Vivian, our beloved 11 year old daughter, has DIPG, a terminal brain condition, is absolutely devastating. We were told at diagnosis that she would only make it for another 9 months.
There is no known cause and no cure for DIPG--making this something that could happen to any innocent child.
We are determined to do everything possible to help find a cure while ensuring that our darling maintains a high quality of life.
With the utmost grace and grit, Vivian has begun her fight to overcome this nighmare. We have resolved to enjoy each moment with her, from her unique sense of humor and gusto for sticker projects to the love that shines through her beautiful brown eyes every night when we sing our sunshine to sleep.
Beyond the conventional palliative options are some promising rays of hope, but all are quite costly ($30,000+ per treatment is standard, with no insurance coverage due to the experimental status) so we must start planning and saving up now to give Vivi the best possible chance.
Since every day with Vivi is a gift, we want to make all her dreams come true. Gwendolyn Gomez will act as the beneficiary on behalf of our daughter.
From playtime with koalas, pool parties and RV camping trips, your compassionate support to this campaign will allow us to make this time extra special + support us in our quest to beat the odds.