My name is Leticia Gallardo, my fiancé Delbert Hoy and I have a 7-year-old daughter named Vida and twin sons, Vincent and Valentine; born October 24, 2019.
Our son Vincent was recently diagnosed with torticollis (a condition preventing full range of motion in his neck) and plagiocephaly (abnormal shaping of the head, usually presented as flat spots) on the back, left side of his head. He also has some minor facial deformities and limited movement and control of his right arm. As a result, he will need to wear a Cranial Orthosis Helmet for 23 hours per day, 7 days a week and attend physical therapy for at least six months. If physical therapy and home exercises don’t correct his diagnosis, correctional surgery for his shoulders may be required; but we remain positive and encouraged that this will not be the case.
He is now 6 months old; the ideal age to start treatment is 5 months. Without receiving treatment, it could result in developmental delays, further asymmetry in his face, and his ears could move forward causing jaw issues later. It is crucial that we get Vincent fitted with his helmet as soon as possible, unfortunately, my fiancé and I do not have the funds available for his helmet and future appointments. We’ve tried unsuccessfully to obtain assistance from St. Jude, Dell Children’s Hospital, Ronald McDonald House and 2-1-1 Texas.
We have insurance; however, the Cranial Orthosis Helmet and physical therapy are not covered by our insurance provider. We estimate costs of the helmet, which is approximately $2,500; co-pays (primarily for weekly physical therapy), bi-weekly pediatric and neurology appointments for approximately 6 months, $2,500; and approximately $1,000 for a baby sitter for my other two children when family are unable to take off from work to watch them when I take Vincent to his appointments approximately 35 miles and two cities from our home.
Additionally, I had to quit my job because my employer could not accommodate my pregnancy and recently, my fiancé’s car was totaled when he was hit by an uninsured driver. We have used up most of our savings in getting care for Vincent since birth. My fiancé works, however, his hours are very limited and inconsistent due to the COVID-19 pandemic. Because we are limited to funds we will soon have to move in with family in order to save money if further care is needed, as well as pay for the unknown.
My fiancé and I would be eternally grateful if you could donate to help fund Vincent’s care, even if it's a small amount.
For more information on infant Torticollis, please refer to the following link. https://kidshealth.org/en/parents/torticollis.html
Thank you!
Leti, Delbert, Vida, Vincent and Valentine
Our son Vincent was recently diagnosed with torticollis (a condition preventing full range of motion in his neck) and plagiocephaly (abnormal shaping of the head, usually presented as flat spots) on the back, left side of his head. He also has some minor facial deformities and limited movement and control of his right arm. As a result, he will need to wear a Cranial Orthosis Helmet for 23 hours per day, 7 days a week and attend physical therapy for at least six months. If physical therapy and home exercises don’t correct his diagnosis, correctional surgery for his shoulders may be required; but we remain positive and encouraged that this will not be the case.
He is now 6 months old; the ideal age to start treatment is 5 months. Without receiving treatment, it could result in developmental delays, further asymmetry in his face, and his ears could move forward causing jaw issues later. It is crucial that we get Vincent fitted with his helmet as soon as possible, unfortunately, my fiancé and I do not have the funds available for his helmet and future appointments. We’ve tried unsuccessfully to obtain assistance from St. Jude, Dell Children’s Hospital, Ronald McDonald House and 2-1-1 Texas.
We have insurance; however, the Cranial Orthosis Helmet and physical therapy are not covered by our insurance provider. We estimate costs of the helmet, which is approximately $2,500; co-pays (primarily for weekly physical therapy), bi-weekly pediatric and neurology appointments for approximately 6 months, $2,500; and approximately $1,000 for a baby sitter for my other two children when family are unable to take off from work to watch them when I take Vincent to his appointments approximately 35 miles and two cities from our home.
Additionally, I had to quit my job because my employer could not accommodate my pregnancy and recently, my fiancé’s car was totaled when he was hit by an uninsured driver. We have used up most of our savings in getting care for Vincent since birth. My fiancé works, however, his hours are very limited and inconsistent due to the COVID-19 pandemic. Because we are limited to funds we will soon have to move in with family in order to save money if further care is needed, as well as pay for the unknown.
My fiancé and I would be eternally grateful if you could donate to help fund Vincent’s care, even if it's a small amount.
For more information on infant Torticollis, please refer to the following link. https://kidshealth.org/en/parents/torticollis.html
Thank you!
Leti, Delbert, Vida, Vincent and Valentine