December 28th we recieved a call from the clinic to come in for an unexpected appointment. It was explained to us that the results from Viera's infant screening came back positive for Cystic Fibrosis- an invisible but life-threatening genetic disease. We soon realized, through our extensive research, that our perfect princess is now going to have to be a strong warrior, fighting for her life daily. Once every month we will be attending the Cystic Fibrosis(CF) Clinic in Winnipeg at Sick Kids Childrens Hospital(closest CF Clinic to us) where a team of nurses, a doctor, a geneticist and dietician(along with a team in Toronto!) will work with us to maintain Vieras health.
Tyler and I already dedicate our entire days to ensure Viera is as happy and healthy as possible in her daily life (including but not limited to: taking enzymes, a CF multivitamin, salt water and physiotherapy). While I am taking my extended parental leave, Tyler has taken a leave from work and is awaiting the Family Caregiver Benefit. Because of this, our family is in need of ongoing financial support.
The funds will help towards not only our madatory monthly trips, but also to Vieras specific dietary and medical requirements (including but not limited to retrofitting our home to a cleaner heat source and air filtration system to help her breathe the cleanest air possible). As our next trip is fast approaching, your support at this time would be greatly appreciated.
To educate yourself on what CF is and how different it is for each person, please visit the Canadian Cystic Fibrosis website (link attached below). As we continue learning not only about the disease, but how to cope with this life change, please understand that it is a very sensitive subject for us.
We would appreciate all questions specific to Viera be answered at a later time when we know more.
From the bottom of our hearts we thank you in advance for your support.
The Bernier Family
Cystic Fibrosis Canada
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