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My niece Victoria Waldrop is currently receiving treatments for Aplastic Anemia. It looks like she may need a bone marrow transplant in the near future. One may think, "At least it's not cancer", however this disease is treated the same as cancer. Aplastic Anemia is extremely rare, and being as there’s not extensive research out there, the doctors don’t really know what to do with it.
We are looking for assistance with the medical expenses (current and future) that are not covered by Victoria’s insurance, as well as coverage for medicines that are currently costing
I am very proud of this young woman. She was a senior at Western Carolina University in Cullowhee, North Carolina (and was on schedule to graduate in 3 years!!). She was recently accepted into the Chi Psi Psychology Honors Society. Unfortunately, it will be a while before she returns to school since her immune system is so weak.
Currently, the Atgam/Cyclosporin treatment isn't working...yet. The Doctor said that it sometimes takes a couple of months before this treatment shows positive results, so we are riding it out another month. We are still preparing to be ready to start the high dose cytoxan chemotherapy as early as mid to late January. However, if her numbers are improving by mid-January, he thinks there is a very strong argument to continue on the current treatment path.
What exactly would this path look like? Well assuming this treatment works, it would place her in a type of remission for maybe 5 or 10 years before she needs to consider another treatment. However, this would mean she stays on the Cyclosporin (which could likely threaten her liver) and regular labs for 5 to 10 years.
The high dose cytoxan chemotherapy would be given in four consecutive days of treatments followed by 6-8 weeks in the hospital. This would almost definitely involve hair loss, nausea, and the other damaging side effects of chemotherapy. This treatment is new and still only carries a 61% survival rate and complete remission rate of 25% over a 5-10 year period.
What about the bone marrow transplant? Well, we are also still preparing for that, as the chemotherapy may not work. The National Bone Marrow Registry is also being searched for a match.
In the meantime, we are setting up a bone marrow drive at Oakland Baptist Church in Rock Hill, SC on January 17th. You can also register with the National Bone Marrow Registry through the link: join.bethematch.org/victoriawaldrop
We continue to press on. Praying, hoping, and believing that Victoria will be made whole. Her immune system is still weak. Her nutrifill counts are half what they were a month ago despite a rise in her white blood count. Please continue praying. Thank you all for your continued support!!
We are looking for assistance with the medical expenses (current and future) that are not covered by Victoria’s insurance, as well as coverage for medicines that are currently costing
I am very proud of this young woman. She was a senior at Western Carolina University in Cullowhee, North Carolina (and was on schedule to graduate in 3 years!!). She was recently accepted into the Chi Psi Psychology Honors Society. Unfortunately, it will be a while before she returns to school since her immune system is so weak.
Currently, the Atgam/Cyclosporin treatment isn't working...yet. The Doctor said that it sometimes takes a couple of months before this treatment shows positive results, so we are riding it out another month. We are still preparing to be ready to start the high dose cytoxan chemotherapy as early as mid to late January. However, if her numbers are improving by mid-January, he thinks there is a very strong argument to continue on the current treatment path.
What exactly would this path look like? Well assuming this treatment works, it would place her in a type of remission for maybe 5 or 10 years before she needs to consider another treatment. However, this would mean she stays on the Cyclosporin (which could likely threaten her liver) and regular labs for 5 to 10 years.
The high dose cytoxan chemotherapy would be given in four consecutive days of treatments followed by 6-8 weeks in the hospital. This would almost definitely involve hair loss, nausea, and the other damaging side effects of chemotherapy. This treatment is new and still only carries a 61% survival rate and complete remission rate of 25% over a 5-10 year period.
What about the bone marrow transplant? Well, we are also still preparing for that, as the chemotherapy may not work. The National Bone Marrow Registry is also being searched for a match.
In the meantime, we are setting up a bone marrow drive at Oakland Baptist Church in Rock Hill, SC on January 17th. You can also register with the National Bone Marrow Registry through the link: join.bethematch.org/victoriawaldrop
We continue to press on. Praying, hoping, and believing that Victoria will be made whole. Her immune system is still weak. Her nutrifill counts are half what they were a month ago despite a rise in her white blood count. Please continue praying. Thank you all for your continued support!!
Organizer and beneficiary
Angela Waldrop
Beneficiary