Vest for Loh

Our beautiful Shiloh was born with Cystic Fibrosis 6 years ago but this doesn't stop her ! However over the last 2 years she has developed serious allergies to fungal spores that are using her precious little lungs as a greenhouse. Because of the Cystic Fibrosis causing thickening of mucus and her not being able to cough it up like the average person can, this has enabled the fungal spores to grow, spread and remain there causing reduced lung capacity and risk of further complications. Loh is a little powerhouse who recovered from pneumonia with just one lung functioning in the past year.
Loh goes into Great Ormond Street every three month for specialist invasive treatment to her lungs she's had 5 treatments so far. Due to return again in April 2016
Cystic Fibrosis affects so much of Loh 's life. Every day she takes a huge range of oral medication, uses a nebuliser and has a physiotherapy regime all before school and again at bedtime. The condition and treatment has given her muscle weakness and tiredness, sometimes she is too exhausted to even do her physio that she can't live without. She has to have this twice a day.
Its a vicious circle Loh needs to be able to run around to loosen the mucus so she can cough up but when she's exhausted she can't which makes it unhealthily build up.
We are looking to buy a specialist inflatable vest that will shake and loosen up the mucus to support the ongoing treatment she's having. This amazing piece of equipment can cost anything from £7000 to £10000 and sadly the NHS are unable to fund this so we are appealing for your help and also will be organising fund raising activities. 
William Bellamy Primary School where Shiloh attends have very generously agreed to match whatever is raised by pupils and parents in their fundraising efforts. Due to unforeseen circumstances Shiloh is now in the process of transferring schools.
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Donations

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  • Gillian Green 
    • £20 
    • 25 mos
  • Mark Stack 
    • £50 
    • 25 mos
  • Nicky Stack 
    • £150 
    • 25 mos
  • Mark Stack 
    • £100 
    • 25 mos
  • Ian Llewellyn 
    • £50 
    • 26 mos
See all

Organizer

Max Howells 
Organizer
London, Greater London, United Kingdom
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