Kashtin Needs a Standing Frame

My son Kashtin is 7 years old and is in grade 1. Kashtin is a very bright, determined, and a fun-loving guy. Kashtin was born premature at 26 weeks gestation, weighing 1lb 13ounces, and he is also a twin. Kashtin's twin brother was born 8 days before Kashtin's birth at 24 weeks gestation. His name was Jodicy (Joe-dis-see), he stayed with us for 29 hours. He weighed 1 lb 6 ounces. Because Jodicy was so premature he was in bad condition. His lungs were not fully developed and his left lung blew. He had one functional lung after the first 12 hours of life. Another 12 hours had passed and the pediatric team told us (parents) that Jodicy's right lung blew. He was on life support. The doctors told us if he stays on life support his body may never develop how it's supposed to. We had to make the hardest decision in our lives. Do we watch our son live a life in a hospital from birth? Or do we let go? I can not see any of my children suffer for a life time, so we decided to let go . We were able to have a private room with Jodicy and with our family. I remember saying to him, "I love you my sweet Jodicy." and he smiled. We said our good byes (for now) before he passed away. I have never hurt so much in my life. I felt like I had a huge hole in my chest that ache enormously, I think my heart broke. We had a small service for Jodicy and laid him to rest on a very cold January day. After the service I went home. The next day I went into labour with Kashtin. I was in the hospital for four days when Kashtin entered the world. It was a bitter-sweet day because Kashtin was born on my birthday and I did not want him to be born so early. I was scared we were going to lose another son within two weeks. But Kashtin is a fighter. 12 hours went by and the doctors said, "He's fighting, he's holding on!" Another 12 hours went and the doctors said the same thing. I thought to myself, "This kid is a fighter." Kashtin was in NICU for three months. I remember the day we brought him home, he weighed 5 lbs and barely fit in his car seat. He was on oxygen and his feeding tube was removed before he came home. Kashtin has come a long way, he is deaf and has cochlear implants. Kashthin is learning sign language and other ways of communication. Because Kashtin was very premature, he was diagnosed with severe spastic quadriplegic cerebral palsy. The awesome thing about Kashtin is that he can function his arms and hands (with some difficulty). He is able to feed and dress himself. Last year he learned how to spell his name with a pencil!! Kashtin is just amazing! Doctors told us he may never walk and I was very upset about it. I had always dreamed of Kashtin walking and running with other children. On May 21, 2015 Kashtin got a walker! He's on his way to walking.
Kashtin needs a standing frame to help keep his spine and hips aligned.  It will also help stretch his tendons in his legs. The standing frame will prevent future operations such as extending his tendons in his legs, he will benefit from a standing frame. 
Kashtin is a blessing in disguise for me. He makes me realize that life is a precious gift just like our children and just like any parent, I want to see my child persevere.  Thank you for taking the time to read our story.