Sixteen-week-old Gunnedah infant Alex King is one in 200 people worldwide who suffer from a rare congenital condition known as Bilateral Perisylvian Polymicrogyria.
Out of just 16 weeks of life, little Alex has only spent four of those out of hospital.
His condition, while vastly unknown due to its rarity, means his speech, feeding and development are affected due to partial paralysis of muscles on both sides of the face,and he will suffer from epilepsy for the rest of his life.
Alex is required to be fed mostly through a feeding tube that is inserted through his nose and feeds directly into his stomach. He travels to Tamworth weekly and sometimes bi-weekly for various medical appointments and is also required to see a paediatrician once a month and neurologists three monthly.
Alex’s treatment is costly and ongoing and he will require regular hospital visits and special equipment as he grows.
His parents, Andrew and Lizzy, and older sister Amber (3), are always by his side, which means accommodation and travel costs are mounting, and prolonged time off work for Andrew.
To help this family with future medical costs please donate on this page. A little can go a long way, every cent helps. 

- Information provided by the King Family.
- Story written by Ashley Gardner.