My name is Tania and I am the proud mamma of two beautifal baby boys, Jayden and Jacob. Jayden is my oldest and he was born with a heart conditon called Hypoplastic Left Heart Syndrom, which basicly means he was born with only half a heart. HLHS affects 1 in 100 kids and up until about 30 years ago kids who were born with this condiotion died just a few short days after birth. My husban Jean and I found out very early on in my pregnancy that he was going to have a very difficult life and it shaddered our lives. He underwent his first open heart surgery when he was only a week old, they tried to prepare the best they could for what was to come, but it wasn't nearly enough. the first year of his life was probably the hardest, he spent 11 months in hospital with complication after complication and when he was 6 months old he arrested and went on life support. I can't even begin to explain to you what I felt, I can't even put into words the pain, the anger, the fear and the confussion I felt. We were told that he may not survive coming off the life support so we gathered our family and they all came to see him, possibly for the last time, as im writing this and I'm remembering, the fear and the pain are all too present. My little warrior pulled through and surprised everyone but as a result of the stroke he suffered extensive damage to his brain and lost his sight, he does not walk or speak and he will be 3 in October. Jayden is what they call a "complicated case" evrything is that much more difficult with him and his doctors are very carfeul with him, he is in and out of the hospital, requires oxygen support and is fed via a GJ tube(this is a feeding tube that sits in his lower intestine). He has had multiple heart surgeies and interventions for his pulmonary artiers(they are tiny). As you may have already guessed I do not work, I stay home and care for Jaydden as he needs round the clock care and is very fragil. My husband works long hours when he can, at one poin he was working 2 jobs just to help us make ends meet, but he was never home and we hardly saw him. In February we welcomed our sweet boy Jacob to our lives, and at the moment Jayden is in hospital. My husband misses alot of work with Jayden being in and out of the hospital and we have gotten to the point where we can not afford to pay rent and we had to move in with family. My aunt is an angel and took us in but it is a full house and my cousin gave up his room for us, so the four of us, my husband the kids and myslef all share one room which can get pretty crowed because Jayden has a lot of equpiment. We love being with family, they help out with the baby when we need to go to the hospital with Jayden and it is nice to not be alone but this is not an ideal situation for us and it is not fair for the kids especialy Jayden who needs so mcuh attention and room. My family has been amazing but this was not forever and to be honset it is quit crowed, we are 10 people in one townhouse, and like said before my cousin gave up his room and is shareing a room with his younger brother. We are forever grateful to my aunt and my cousin for opening up their home to us but we need to have our own space where Jayden has the room he needs for his development and all of his equipment, but we can not do it alone, so today I ask you to help us give Jayden a home. Thank you for taking the time to read our story and my God bless you.

